Cold hands & feet are gone or are they?

[GKeith]

But, one thing I don't understand is why you take your T3 an hour after your levo. Why don't you take them all together? As long as they are at least an hour before food, or two/three hours after, it doesn't matter when you take them. Of course, different times make a difference to some people, but I've never found that the time I take it has any sort of effect.

Greygoose's comment, above, from another recent post made me think and I took it to heart: it was past midnight, last night, and I swallowed my T4, then, a couple minutes later, 10 mcg's of T3, then, maybe 30 minutes later, 10 more mcg's of T3. I left the last 10 mcg's of T3 in a bottle and fell asleep, only to wake up with warm hands and feet, a few hours later, an unusual occurrence for me, because I've “always” had, at late PM and early AM times, cold hands and feet for years, but now they were warm: until I woke up a couple of hours later with numbness in my left thumb and forefinger; which quickly went away, almost as soon as I woke up and began rubbing it, although it quickly began, again, to get cold(er) by the second. It was eight AM and I got up and realized my hands were becoming warm again. I sat down to eat breakfast, noticing my hands were becoming cold again and rubbed them, causing a slight warming yet again. And then, I felt (feel) as if I've been underdosed my whole life. I'm taking my last dose of 30mcg's of T3, that my endo so “generously” prescribes for me, all the time practically 'crying when I ask him to prescribe a little more T3and he acts as if he has been asked for the key to 'Fort Knox.'

I know, this sounds weird but only because it is (weird) as we human 'patients' (aka guinea pigs) go through so many 'changes' due to these hyper, hypo, “symptoms” as they alternate through our bodies, leaving us, human beings behind, with headaches, weight gains, weight losses, mind numbness, brainfogginess, and so many more “unexplainable happenings,” that, I feel, even the best of writer's cannot put these feelings into words.

It is, I believe, many times un-fathomable, almost as if I, a mere, mortal human being, am attempting to unlock the mystery of the spirit, of the soul, and there are no words “available” for me to choose from. And so, I sit here, banging away at my word processing computer and wonder, constantly: “why did this have to “happen to me?” And, I search my mind, my spirit, my soul, my thinking process and wonder: Where are the words? Where have they gone? Will I ever 'figure' them out? Will I ever be “cured?” Will I ever be healed, will I ever feel “normal” again, will I ever 'join' the human race again? Will I ever … will I ever … And I think: “only god knows,” but then I think: “No, not this time, not again, not this time, this time I am going to find out (what only “God” knows) because, obviously, the gods, those here on earth (aka medical doctors, specialists, endos, scientists, experts, writers, geniuses, etc.) don't really 'know' anything. I'm going to find out, oh yes, and then I'm going to tell the world, and be rejected, by the world, but, I'm going to find out … I'm going to find out … or (maybe) die trying.

[Aurealis]

Just keep going - as I commented on your other post - you may do better tak8ng a good dose of T3 first thing each day. See Paul Robinson’s analogy (in his book) about T3 crossing the cell wall as compared to a wave breaching a sea wall. This has been my experience. I think you are undertreated.

[Angel_of_the_North]

"But, one thing I don't understand is why you take your T3 an hour after your levo. " So why do you? If it was NDT it would all be in the same tablet. I'm on T3 only so doesn't affect me.

[GKeith in reply to Angel_of_the_North]

I agree and I, now, do take it together: I am trying every possible combo and will, someday, soon hopefully, try NDT.

[greygoose]

I am a self-confessed conspiracy theorist - I see ulterior motives everywhere! And, it's my belief that doctors - who rarely want us to take T3 - and Big Pharma - who definitely don't want us to get well - conspire to give us 'advice' and 'instructions' that set us up to fail.

Earlier today, I explained why symptoms differ in different people: 'The thing that makes hypothyroidism so difficult to diagnose is that the symptoms are non-specific. Which is understandable when you know something about it all. Doctors define hypothyroidism as high TSH, but, it's actually low T3 that causes symptoms. T3 is the active thyroid hormone needed by every single cell in your body. When T3 is in short supply, the body shuts down T3 receptors in parts of the body that are not essential to survival - such as in the diaphragm - there are other muscles you can use for breathing. But the pattern of receptor closing is different for everybody, which is why people don't all have the same symptoms.'

healthunlocked.com/thyroidu...

So, you've been hypo for some times, with all these receptors turned off, and you need to get them opened up again. To get the body to open these receptor, and get rid of your symptoms, it needs to sense that there is going to be enough T3 from now on. In the words of Dr John Lowe, you need to flood the receptors. But, you're not going to do that with the piddling little amounts of T3 that endos so graciously grant you. Obviously, you need to start low and increase slowly, but you do need to increase. 5 mcg T3 is rarely going to be enough to make someone, whose been hypo for years, well. It's not going to do much flooding, is it. So, splitting the dose isn't always a good idea.

However, even that doesn't explain why he said to take the T3 one hour after the levo… I think that brings into question his whole data base of thyroid knowledge! lol

[GKeith in reply to greygoose]

greygoose,

I, also, see ulterior motives everywhere but it stems from growing up in a world that thinks more of the monied, the powerful and the famous than it does of the poor, and powerless, “invisible” workers, who the wealthy use as their “slaves.”

These people include huge corporations and conglomerates, such as Big Pharma, insurance companies and doctors to do their biddings. From my most basic research it appears that, some of these corporations have actually infilterated many medical schools deep enough in order to actually, literally, change some of the information on hypo & hyper thyroidism just enough to enable certain schools to actually buy the textbooks some of these Big Pharma publish, specifically medical school books that directed doctors to believe that T4, specifically Levothyroxine, is the only pill needed to “cure” their patients of their “sickness,” with the “proof” of this “truth,” being the TSH, which soon became the 'gold standard' throughout many medical communities, and, also, actually convincing many doctors to believe that this is the truth. I have met many of them myself and, of course, I also realize that it “pays” these doctors, in many more ways than one, to “go along,” with their med school teaching, ending up with doctors with no character whatsoever and who worship at the altar of the Donald Trump's of this world: their god(s) fast becoming their wealth and power.

Their speech is drenched with pseudonyms of their true beliefs when they speak of themselves as being an honest, forthright, hardworking and truthful person when they are everything but that as they lie, cheat and steal from the poor, helpless and weak people that they use as their slaves, taking money from Big Pharma, insurance companies and spreading the money around as they praise one another by referring other patients to them, thus making more and more money while “quieting” the patients as they agree with one another, as Levothyroxine becomes an enormous money-maker: therefusers.com/how-big-pha... as they lose what character they have have once had and join the “parade” of medical “experts” as they line up for their cut of the “take,” ignoring completely the pain and sickness they leave in their wakes, curing few and condemning many, as they no longer recognize the lies they are told and now, the same lies, that they pass on, not only to their patients but, even, to their colleagues.

[greygoose in reply to GKeith]

Yup, You're absolutely right about all that. That's exactly what happens.

[GKeith in reply to greygoose]

I took my entire prescription of T4, 50mcg, and all the T3, 30mcg's last night and a strange thing happened, I had expected to have an adverse reaction but, instead, I felt nothing. I took it all around midnight and when I woke up to use the bathroom, I felt really "good" and as I ate breakfast, I felt even better. I am now, just finishing my day and I lifted weights this afternoon and then ran 3 miles. Still feel great and it is 8:00 P.M., less than 4 hours before I take my next dose. My hands and feet are still warm but shades of cold are coming to my hands. So far so good. I do feel as if my endo is an idiot because he had (has) no clue: at the last visit he screamed at me to "stop trying to be my own doctor" and I left really pissed off and determined to do what I just did, thanks to primarily greygoose's words, as well as others here, and that is, to determine my own dose for my own health. We have to lose our "fear" of realizing that (the vast majority) of doctors are "slaves" of the devil: of time translating into money for them and they have one-track minds because of this, copying one another in their words and actions, as they give in to these worldly factors and denigrate "character" as "stupidity" and relegating time and money as the only gods "worth" giving in to because it meant (means) "success" for them and every other "wealthy" doctor, who joins them in their "crusade."

Peace be upon us all (even the doctors) and may we all be strong enough to make our enemies our friends.

[greygoose in reply to GKeith]

I'm glad it's working for you. But, be careful not to over-do things!

[GKeith in reply to greygoose]

If I start going in the other direction, then, I go back one click, which should be my optimum dose, hopefully.

[greygoose in reply to GKeith]

No, I didn't mean with the dosing, I meant with your sporting activities!

[GKeith in reply to greygoose]

Yes, you are right; I have been "addicted" to "workouts" since I was 15 years old: 58 years, so it's hard to stop, even though my legs are about used up. Thanks for the thought and may god's peace find you.

[greygoose in reply to GKeith]

And you, too.

[trelemorele in reply to greygoose]

"...When T3 is in short supply, the body shuts down T3 receptors in parts of the body that are not essential to survival - such as in the diaphragm - ..."

Would you have links or more information which are those non essential body parts getting switched off when t3 is in short supply. I wanted to compare with my own experience.

Found your reply very interesting and it tallies nicely with my past 4 years experience of lack of t3 and then flooding my body with t3 to get better.

But I'm very interested what other body parts could have switched off on insufficient treatment. Thanks

[greygoose in reply to trelemorele]

No, I'm afraid I don't have any links. Sorry. I just remember the diaphragm because it's what happened to me. But, I'm not sure it's whole body parts, just a few cells here and there in less essential areas, but more and more receptors are shut down as the T3 becomes in shorter supply.

[GKeith in reply to trelemorele]

I wish I knew exactly how much T3, and in what dose, I should take to get rid of any complaints I now have and to make me feel "again" like Superman but, then again, whether I have hypo or not, I felt like Superman when I was 20, 30, even 40 and 50 but now, I'm 73, so ... Sill, I'm sure greygoose has hit upon something, something somewhat "startling" to me and, I'm sure many others, who, like trelemorele, are still searching for the "answers" when she says the T3 receptors not essential to "survival" shut down because the dose of T3 is under instead of over or exact and so we all continue to "search" for the "exact-exact-triple exact" dose, if it ever is to be found, and, God willing, we will soon find ours... someday ... and, hopefully, we'll still be "alive" when we find it. Peace be with you.

[Hidden]

I know exactly when my T3 is becoming low. My left ankle starts to ache an injury from more than 30 years ago which never ached before my thyroid was removed. Also my right knee which I fell on years ago, weird or what! It's as though my brain is finding old injuries due to the lack of my T3.

[Astridnova]

My right knee pops out when I am really low, and it gives me warnings if I am getting low. If I am well medicated, I can go snow skiing.