Chicken or the egg ?: From reading here and the... - Thyroid UK

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Chicken or the egg ?

jib70 profile image
9 Replies

From reading here and the PA Forum (I've posted on both), I'm wondering if I get my B12 increased will that help my thyroid - or is it pointless dosing myself until my thyroid problem is treated?

I have been referred to an Endo of my choice but he is in demand so a long wait (doesn't do private consultations). Meanwhile I've been prescribed B12 tablets 1000 mcg and as they don't seem to help I'm now trying a B12 spray.

Not been diagnosed with PA so maybe this is all due to NHS results suggesting hyperthyroidism, sub clinical. ?

My Vit d was low but nothing done about that. Would a supplement there help me feel more normal?

I seem to ask a lot of this forum, and admit I'm ignorant (and brain fogged), but would be so grateful for any advice if my questions make sense. Thank you. j x

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Marz profile image
Marz

From reading some of your other posts I can see that it is not just the B12 that needs to be improved. Which B12 tablets did the Doc give you ? Cyanacobalamin or Methylcobalamin ? Also you need to supplement B9 or Folate as it works with B12 in the body. Also your VitD was low so also needs supplementing - again there is a spray available which also contains VitK2-MK7 - an important co-factor. With winter approaching I would suggest a dose of around 4000 IU's. Magnesium is another important co-factor ...

As you have Hashimotos it is possible you have absorption issues so improving stomach acid could be helpful as would looking at your diet. It is suggested here that being gluten free can help to heal the gut and improve absorption. I have Crohns too - so found it helpful as do many others here.

I believe you were once treated for an over active thyroid and cannot help thinking this has somehow confused your thyroid as your FT4 is low in range.

jib70 profile image
jib70 in reply toMarz

Oh thank you so much Marz. The Doc gave me Cyanovit B12 , but the B12 spray I just ordered is methylcobalmin. Is there a difference?

I thought my folate was OK. Bluehorizon = 27.20 (8.83-60.80) and NHS 15.1 (3.90-26.80).

I did think maybe I should supplement VitD and I will get the one you suggest, thanks.

You mention I have Hashimotos but I thought Hashis was underactive, and from my NHS printouts they say I'm possibly Hyper (that is overactive?) I am so confused, apologies.

I began gluten free a couple of months ago then relapsed, silly me. Maybe that accounts for the nausea a couple of hours after meals?

Most of the NHS tests just report "Normal, No Action" - apart from my bloods. I know I'm not "normal" and want to take control of my conditions.

So appreciate your help and grateful for any advice. j x

Marz profile image
Marz in reply tojib70

healthunlocked.com/thyroidu....

One of your earlier posts above - Anti-TPO are raised = Hashimotos :-) Hashimotos can swing from under to over ....

Yes folate is fine ...

Cyanocobalamin differs from the Methyl in as much it has to evolve into Methyl and beyond - see link below ...

biolab.co.uk/docs/vitaminB1...

facebook.com/notes/pernicio...

jib70 profile image
jib70 in reply toMarz

Marz thanks for your response, I am vegetarian, eat lots of eggs and cheese. From this veganmotivation.com/methylc... I thought the methylcobalamin spray might be better for absorption - am I misguided?

Have to ask but I assumed I had always been hyper since I've always had loads of energy (get tired tho). Always been on the slim side but last 18 months gone from 64 kgs to 50 kgs. The energy has disappeared, plus memory, plus loss of motivation, plus lots of neuropathic symptoms. Is that usual in hypo ?

Any advice would be so much appreciated. p.s. I'm not on f/b so cannot access one of your links. j x

Marz profile image
Marz in reply tojib70

Your spray sounds fine. How much are you taking ? Hypo and B12 deficiency overlap often ...

jib70 profile image
jib70 in reply toMarz

Only got the spray today and trying 4 x a day. It is a 1200 upg.. I'm also still popping the Doc's 1000mcg pill daily as well..

Just wish I understood the correlation of hypo/hyper, find it all so confusing re: symptoms.

Thank you for your help, it is invaluable. j x

Foxtrot89 profile image
Foxtrot89 in reply tojib70

Hopefully this will help you to understand why you can feel both hyper AND hypo at different times.

thyroidpharmacist.com/artic...

jib70 profile image
jib70 in reply toFoxtrot89

Crikey - thanks Foxtrot. I may still be confused, but beginning to appreciate why it can be so confusing if it is Hashi's. The first few sentences in that link apply to me, just how I am - such an education, amazing.

Will read, read and read even more to try and grasp the complexities of Hashi's now. Many thanks. j x

Foxtrot89 profile image
Foxtrot89 in reply tojib70

If you mean the thin and anxious bit that’s me too! Everyone thinks Hashimoto’s / underactive thyroid means weight gain but for me it’s been a slow process into having a now complete absence of appetite, and extremely slow digestion, so I struggle to be able to actually eat and process enough food to keep weight on...

The website I sent you is an excellent place to start reading up as Izabella Wentz aka Thyroid Pharmacist has Hashimoto’s herself (has put it into remission). She absolutely knows her stuff and is good at explaining it.

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