Advice on starting NDT please?: Hi I’ve just... - Thyroid UK

Thyroid UK

140,289 members165,010 posts

Advice on starting NDT please?

rosserk profile image
10 Replies

Hi

I’ve just received my supply of NDT and I was hoping someone could advise me on the dosage and process of swapping from Levothyroxine please? I have no idea where to start. 😭

Written by
rosserk profile image
rosserk
To view profiles and participate in discussions please or .
Read more about...
10 Replies
rosserk profile image
rosserk

Oh ok thanks ! X

rosserk profile image
rosserk

I’m currently taking 175 mcg of Levo my last blood test was as follows

TSH 0.011 ( 0.27-4.20)

T4 23 ( 12-22)

T3 6.3 (3.10-6.8)

Even though my results look good I still feel awful so hoping NDT suits me better

AnnaSo profile image
AnnaSo in reply to rosserk

Hey, your results are picture perfect. You say you feel awful, what symptoms do you suffer from?

Have you had nutrients checked: B12, iron panel, D3, Zinc, Folate? Often deficiencies in these make us unwell.

Another reason could be low/high cortisol. Have you ever had it checked?

rosserk profile image
rosserk in reply to AnnaSo

My vitamins are ok except my B12 which is too high. I haven’t had cortisol checked but I’m hoping I can persuade my rheumatologist at my October appointment to check them 💐

AnnaSo profile image
AnnaSo in reply to rosserk

Oh dear, I’m sorry not sure if i know why you could still feel unwell 😕 hope you get to the bottom of it! Sending hugs!

rosserk profile image
rosserk in reply to AnnaSo

Thank you that’s really kind of you. I’ve read lots of people still feel unwell even though their numbers look good. Mostly people say it’s likely vitamin related or they need to go gluten free. No ones ever given another reason, so I was thinking that perhaps it’s because Levi just doesn’t suit some people and they feel better trying something different. I hope so ! 💐

AnnaSo profile image
AnnaSo in reply to rosserk

Could be, we do hear stories like that. I am on NDT myself and feel tons better than on Levo. But I had a bunch of other issues and never as great looking blood results ☺️

Muffy profile image
Muffy

Are you self medicating on the thyroxine?

rosserk profile image
rosserk in reply to Muffy

Self medicating? Sorry I’m not sure what you’re asking. I was prescribed Levothyroxine.

Muffy profile image
Muffy

Oh, self medicating means that you have bought it yourself without a prescription and you have answered the question.

Not what you're looking for?

You may also like...

Advice for starting NDT?

Hello everyone, I've never taken thyroid before, and am a little nervous! Do any of you have...

NDT advice please

As I feel worse with each increase of synthetics t3 and t4 I am looking to try this. I am currently...

Advice on NDT

Hello all! Im currently on 150mcg levo a day. I've just seen my private Endo who has prescribed...

Advice please side effects on NDT ?

Hello lovely people and firstly thank you all so much for the help you've given me so far. Finally...

Starting NDT

So I'm to take 1 grain twice a day. I used to take my levo around 6am so intend to take my 1st...