T3

[Ari3]

Has anyone ordered t3 called THYBON 20mg from Germany? Reviews and comments please thank you

[MissGrace]

Although I have not taken it, this is the T3 recommended by my very eminent private endo. He has given me a private prescription for this (you’ll need one to get it from the uk) and has numerous patients who take it.

[Ari3 in reply to MissGrace]

Thank you

[knitwitty in reply to MissGrace]

Just a quick query, would a GP be able to write a private prescription for thybon 20 that could be sent to Germany in the same way and endo could prescribe it?

[Ari3 in reply to knitwitty]

Yes of course x

[knitwitty in reply to Ari3]

Thank you so much, I shall discuss it with her next week.

[Ari3 in reply to knitwitty]

If she is understanding than it should not be a problem .my gp is very understanding but they don’t have expierence of treating people only on t3 so I will need to introduce little bit of t3 on top of my ndt

[MissGrace in reply to knitwitty]

I think you may need supervision and advice - it is quite potent - at least twice as potent as Levo. The German pharmacy were great and sent it really quickly. They advised communication by email - when I phoned my German was a lacking - as was their English!

[cazzaleo in reply to MissGrace]

Could I ask which one of the German pharmacies you used? Will need to send my prescription off soon and wasn’t sure which one of those listed by TUK to use, would feel more comfortable being able to communicate by email with them but couldn’t find an email address on any of the sites

[SlowDragon Administrator]

Loads of people on here get Thybon Henning on private prescription and order direct from Germany

Far cheaper than UK T3, if having to pay yourself

thyroiduk.org.uk/tuk/treatm...

[Ari3 in reply to SlowDragon]

Thank you x

[Rita-D]

Yes I do. I love it! Service from the German pharmacy is great. Simply order and pay online, post your prescription to them to the address on the confirmation email and they’ll post the meds to you. Can take a couple of weeks but that’s only due to post. Very pleased with the strength of T3. Cost is 30.10 Euros and 5 euros postage for 100 20mcg tablets.

[Ari3 in reply to Rita-D]

Thank you do you know their ingredients ?

[Ari3 in reply to Rita-D]

Hi Rita-D forget to ask you what website is it to order this medication. Thank you.

[RedApple Administrator in reply to Ari3]

Ari3, Youcan find details of websites to order Thybon through (with a prescription) on the main Thyroid UK website here thyroiduk.org/tuk/treatment...

[Fifteen in reply to Rita-D]

Would you give me details of the pharmacy you use? I have my NHS prescription and now need to get my T3 as soon as possible.

[Fifteen in reply to Rita-D]

Rita-D I have found the website so there is no need to reply to my query.

[Rita-D in reply to Fifteen]

Sorry, only just seen this. Glad you found it.

[Kipsy]

Yes it’s great- been on it since May. Very concerned though that the private prescription has to be written by a doctor in the EU according to German pharmacies’ terms and conditions...expect to be left without a reputable source post Brexit....

[Ari3 in reply to Kipsy]

Thank u for ur reply do you know their ingredients?

[RedApple Administrator in reply to Ari3]

Ari3, you can download the full PIL for this through the main Thyroid UK website. thyroiduk.org/tuk/treatment...

[Rita-D]

Cellulose, Di-sodium Thiosulfate-5-water, Fine particle Silicon Dioxide, Hydrogenated Castor Oil, Liothyronine Hydrochloride, Microceystalline Sodium Carbonate, Pre-gelatinised Maize Starch

I am allergic to Teva and Wockhardt brands of Levothyroxine (I can only take Mercury Pharma) I have no issues with Thybon Henning.

Hope this helps.

[Ari3 in reply to Rita-D]

So are u on t3 only now? Thank u ever so much for so prompt reply xxxx I will consider to add this to my ndt as my t3 is on lower side n tsh is stabilising.i think I need to add tiny bit t3 what do you think? I feel crap lol t3 is not moving at all just tsh is dropping .

[Rita-D]

I am onT3 only at the moment as I experienced myxedema I combination of 100mcg T4 and 30 mcg T3. Came off all meds for 10 days and then introduced T3 only back, slowly increased T3 back to 30 mcgs and am having a blood test on Tuesday morning to see where I’m at. Adding T3 has made such a difference to moodabd energy. Weight is still and issue so am having hormones tested too. I am heterozygous for DIO2 (private testing) which means I struggle to convert T4 to T3. It helps me keep my T3. I have Thyroid Eye Disease (nearly 3 years) I feel T3 only has helped my eyes too, although only been on T3 only for 2 weeks.

[Ari3 in reply to Rita-D]

What is myxedemia please could u explain? When u did DIO2 test was it only one gene which was faulty as I did the same test and it showed one genes fault . Does it mean I need to add t3 to my ndt? I also have low b12 low magnesium and ferritin does it mean Iam not converting now from t4 to t3 and there is no point to increase my dose otherwise it will go to rt3 and I should address vitamin deficiency first?please give me some advice I feel so so bad headaches tinitus is so bad just feeling awful Iam in 1/4 and 1/4 ndt and when I try to up it I feel worse and worse

[Rita-D in reply to Ari3]

Myxedema is swelling. It's not fluid retention as the "water" under the skin is like jelly. You should be able to pinch your skin but with myxedema you can't. It may not be all over your body it might just be in certain areas, mines on my arms and my legs. It's very difficult to get rid of and certainly adds to weight gain. I'm trying very hard to get rid of it, which is why I came off all meds for 10 days and am slowly reintroducing T3 only to see if that makes any difference. I have 1 faulty gene (heterozygous). It just means that you may not be able to convert T4 to T3. My endo said I was a "slow" converter. If you're having trouble raising NDT you might have adrenal problems. I'm not the best person to ask as I too had problems. I felt increasingly worse on NDT, so I went back to Levo.

I would suggest creating a new post about this problem and you;ll get some advice from others who have more experience of NDT.

[Ari3 in reply to Rita-D]

Thank you so much but I’m taking adrenal support from Dr P they were very low but now after couple of month on Adrenavive Ii 1/4 and 1/4 capsule my two morning once are normal and two afternoon high range .but Iam better than I was. I think so many things play part in this it is crazy Iam still struggling but trying to go inn AIP diet which is autoimmune protocol diet and taking huge amount of suppliments. Do you take anything for adrenals?

[Rita-D in reply to Ari3]

No not taking anything for adrenals. I did have adrenal support recommended by Dr P but my family really weren’t happy about me seeing him and persuaded me back onto Levo as I just wasn’t doing well on NDT.

[Ari3 in reply to Rita-D]

Why wasn’t u doing well on ndt what side effects u had ? We’re your tsh and t4 t3 optimal ? Have u done reverse t3 test? How will u introduce t3 than ?

[Rita-D in reply to Ari3]

Was very hypo and increasing made no difference! Was on NDT for a year and taking loads of supplements and seeing a functional health practitioner and getting much worse. Eventually gave up on NDT. Went back on Levo. Felt better for about 6 weeks on each increase in dosage and then reverted back. I’m still trying to work it all out myself so I can’t really offer any advice. I’ve never been optimal. I have Thyroid Eye Disease too.

[mauschen]

I am in Germany take Thybon and have no problems with it. I started with a quarter tablet 5 MfG and reduced my Levothyroxine . When I was taking 20 mcg per day, my Endocrinologist got nervous because I have heart/lung disease so I slowly reduced to 10mcg Thybon. My TSH is severely depressed but I feel fine. My only difficulty is stopping other doctors from interfering when they see my TSH.