Substernal multinodular goitre-no diagnosis yet

[jib70]

I've written before and had some really helpful and informative replies re thryoid/bloods etc but things aren't going as smoothly as I hoped and don't know who else to ask for info now.

I've had a multinodular goitre for 20 odd years, no treatment, no advice, but years ago suddenly with no explanation GP prescribed carbimazole. After several months. GP stopped that 'cos he said I had myxodema!

I'm now in a situation where I'm really not functioning properly, so many symptoms too many to list. Had a Medichecks + 11 test, showed low B12 & vit D took results to GP, so GP had more bloods done but NHS results show B12 is fine !! But also told I have macrocytosis (large red blood cells) so try B12 pills for 3 months and see if cells reduce.

Additionally after a scan found I now have a substernal goitre, but 18 weeks to see an endo. I truly don't know how to help myself. I'm trembly, forgetful, confused, painful joints and so very exhausted all the time.

Can you please help? j x

[LouiseRoberts]

Sorry you had no replies. This may be because your post was missed or simply because no one had any relevant info.

If you still need help you could try posting again

Louise