Hi,
Recently diagnosed and my latest blood test (TSH only requested by Dr) on 50mcg of Levothyroxine. In the comments it mentions hypopituitarism. I’ve become very anxious with my Hypothyroidism. Is this a usual comment?
Serum TSH level 3.05 mu/L (0.30 - 4.20)
(JDW) - Normal
TFT results indicate adequate replacement
assuming that patient does not have hypopituitarism.
(Provided on current thyroxine dose for at least 2-3 months.)
Cel_76
It will be a stock phrase used by the lab, just like the comment "Provided on current thyroxine dose for at least 2-3 months".
With a range of 0.30-4.20 I don't agree that a TSH of 3.05 indicates adequate replacement.
The aim of a treated hypo patient generally is for TSH to be 1 or below or wherever it needs to be for FT4 and FT3 to be in the upper part of their respective reference ranges when on Levo if that is where you feel well.
And TSH alone is not the full picture, for that you need FT4 and FT3 tested as well.
How do you feel?
Thank you for replying. I feel a mess ... exhausted, over anxious, I’ve put on a stone and can’t shift it, and have aches in my neck and fingers. My Drs think I may be going through the start of the menopause at 42 as my thyroid results in their eyes are normal 
When I saw Hypopituitism I panicked as I am now over anxious and thought maybe that’s why I feel so exhausted.
When we are hypothyroid it's common to feel more anxiety
When on Levothyroxine dose should be increased slowly in 25mcg steps until TSH is under 2 (most need it at least near one)
Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine
(Many of us need TSH nearer 0.2 than 2.0 to feel well)
See box
Thyroxine replacement in primary hypothyroidism
pathology.leedsth.nhs.uk/pa...
For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12
Do you know if you have had thyroid antibodies tested? If not ask GP to test, plus vitamin tests too
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .
Link about thyroid blood tests
thyroiduk.org/tuk/testing/t...
Link about antibodies and Hashimoto's
Cel_76
You feel like that because you are undermedicated. As SlowDragon says, you need an increase in your dose of Levo until your levels are where they need to be for you to feel well.
I would go ahead with private testing and here are the tests recommended (same test, different company)
Blue Horizon Thyroid Plus Eleven bluehorizonmedicals.co.uk/t... - currently two codes worth trying
August15 for 15% off, says today only but has been going for a few days
AUGUST20 - supposed to be for the whole of August for 20% off
Medichecks Thyroid Check UltraVit medichecks.com/thyroid-func...
Come back with your results, include the reference ranges, and members will comment.
When you have hypopituitarism then TSH isn't relevant so FT3 & FT4 needs to be tested. You could ask your GP to do an am blood cortisol to put your mind at rest.
Fantastic. Thank you. I will ask and see what they say
Actually, if it shows anything It shows that you need a dose increase as TSH should be under 1. If this was your first test and you showed "normal" TSH and low thyroid hormones, it could indicate a pituitary problem (as TSH can't rise), so it's just the lab covering their backs. Really, you need at least free T4 as well as TSH to tell if you are on the correct dose. Ask for a 25mcg increase and the same again in 6 weeks if your symptoms have not gone away.
Latest results please help!! 
Latest Results Advice Please
My latest blood results
Latest blood test results
Latest test results - hypothyroid 
