Neuropathy

[patchface]

Does anyone else suffer from Neuropathy? Bloody back and not Diabetic or lacking VitaminB12...it's driving me crackers.

[SeasideSusie Remembering]

patchface

I think I have, in my feet, not from being diagnosed by a doctor but from something my late husband had. He had a lot of chemo and experienced a feeling which he described as "feeling like a scrunched up sock in the area between the balls of his feet and his toes". He found it quite painful to walk and ended up only being able to wear slippers with memory foam insoles which made it less painful. The hospital told him this was neuropathy due to the chemo.

I have started to get this same feeling in the same place but I have no idea what has caused mine as, like you, B12 level excellent and diabetes check clear.

[greygoose in reply to SeasideSusie]

Just being hypo will cause neuropathy. As one doctor explained it to me, low T3 causes nerve endings to die off in the extremities.

[SeasideSusie Remembering in reply to greygoose]

Thanks GG.

I'm not attributing it to being hypo though, because I was diagnosed 43 years ago and this is so recent - within the last few months - and low T3 hasn't been a problem, it was middling when I had a conversion problem and now I've added T3 to my Levo for the 2.5 years it's usually around 75% through range.

I've just checked the medications listed as causing neuropathy and the only one that applies to me is Ciprofloxacin (one of the Fluoroquinolones) which I had to take a couple of years ago for a flare up of the colonised pseudomonas in my lungs. I did react to it at the time (so can't take it again) but I know that it can have effects further down the line, so it's possible it's linked to that.

[greygoose in reply to SeasideSusie]

Oh, dear. That would be sad.

[SeasideSusie Remembering in reply to greygoose]

It's a terrible antibiotic and has caused untold misery and life changing effects to so many people. I mentioned to my lung consultant, when he prescribed it, that I had heard it can cause problems for some people, he assured me there was no problem at all. I'm not so trusting now!

Unfortunately, it's often given for bladder infections and UTIs and people don't realise. There are so many horror stories out there, it has a myriad of different effects.

The trouble pseudomonas is that Cipro is the only antibiotic that it is sensitive to so there's no real choice. Fortunately I've not had a flare up since and hope to keep it that way for a long time to come.

[greygoose in reply to SeasideSusie]

That's terrible! Why don't doctors know things like that? What about the yellow card system? Don't people use it?

[SeasideSusie Remembering in reply to greygoose]

I imagine they do, I certainly did a yellow card report, but it's a worldwide thing and I think lawsuits have been brought about in the US.

Some reading, just seen this myself and it makes me wonder. Investigations into my sporadic tachycardia led to a heart ultrasound last week. No further forward as to why I'm getting tachycardia, but it did discover a mitral valve prolapse (so I went to find out why I was having one problem and came away with a different one!). Now I'm wondering if this is something to do with the effects of Cipro.

dailymail.co.uk/health/arti...

floxiehope.com/

There's lots more out there.

[greygoose in reply to SeasideSusie]

Mitral valve prolapse can also be caused by hypo.

[patchface in reply to SeasideSusie]

Sorry to hear about your husband x

[SeasideSusie Remembering in reply to patchface]

Ah, bless you, thank you

[SlowDragon Administrator]

What are you actual results and ranges for vitamin D, folate, ferritin and B12?

How's your thyroid levels? TSH, FT4 and FT3

Lastly do you have Hashimoto's?

[patchface in reply to SlowDragon]

I haven't a clue to be honest just told my levels are fine and here's you medication!

[SlowDragon Administrator in reply to patchface]

First thing is you are legally entitled to copies of your blood tests

Ring receptionist and request printed copy of your blood test results

Come back with results and ranges on exactly which tests have been done

Private testing is available for full testing

Especially important to test vitamin D, folate, ferritin and B12

FT3 and FT4 plus both TPO and TG Thyroid antibodies

[greygoose]

Sorry, I'm being thick, but are you saying you have neuropathy in your back?

[patchface]

No I haven't but also have never been told anything about T3(reading later threads).

[SlowDragon Administrator]

Low vitamin D and low B12 and other B vitamins are extremely common with hypothyroid

Low vitamin D affect gut bacteria and then low B vitamins

Essential to know if you have autoimmune thyroid disease Hashimoto's) diagnosed by high thyroid antibodies

Low vitamin levels are extremely common with Hashimoto's

Low Vitamins and/or low FT3 can cause neuropathy

drgominak.com/sleep/vitamin...