There is a new organisation call Healthcare Safety Investigations Branch that looks into system wide healthcare issues. I wonder if everyone on this site were to contact them we could get an investigation into how poorly the U.K. healthcare system (NHS) treats people (mainly women) with thyroid disfunction? And get recommendations to upskill GPs and Endos as well as getting more options for medication. Access to NDT for some of us would make such a huge difference. I’ve spent thousands of ££ to get myself well.
New investigations body : There is a new... - Thyroid UK
I think you have a point there. Not everyone who has hypo is diagnosed when they should be - neither is a blood test taken to exclude hypo/hyper. It used to be done through our clinical symptoms but nowadays few doctors know symptoms at all.
We should also be allowed to trial options instead of being given the cheapest plus extras to control remaining symptoms.
If there is enough support from people on this forum we can submit a referral for an investigation. It would be great to submit some of the hundreds of stories I have read on this forum that clearly demonstrates we are being failed miserably by the NHS and may be costing the system millions of ££’s in misdiagnosis, unnecessary drugs and surgeries and the lost of employment and quality of life for patients. The NHS constitution should guarantee us better care than we are currently receiving. If interested in pursuing let me know in this forum.
We are under the 'umbrella' of Thyroiduk.org.uk who are at the forefront trying to change attitudes and at present all their efforts are about T3 which was withdrawn from many a few months ago. They also met with Lord Hunt in the House of Lords. I shall give you a link. If you are not a member of TUK you can also become a member.
They do an immense amount of work for only three people in the office and I suspect their families join in when there are 'things going on'.
I have just looked at your link at they are funded by the NHS so will the Endocrinoloigsts wish to listen to us? Not so sure.
First of all they withdrew NDT's (natural dessicated thyroid hormones - in use in various forms from 1892 and very successful as no blood tests then only the doctors brilliant expertise in knowing clinical symptoms. Then just recently we've also had T3 withdraw - disaster for many.
This sounds a really good organisation. Do you know if they are anything to do with Government. If they are, I wonder if they would have any more 'tooth' than the Health Ombudsman's Office. Like you Geniler, I have spent a lot in an endeavour to get better health than at present.