Thyroid level moving again: Hi everyone . I’ve... - Thyroid UK

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Thyroid level moving again

NickyUk profile image
4 Replies

Hi everyone . I’ve posted before about my thyroid. I have Hashimotos .

I just had my bloods done and my tsh was 0.24 (range 0.27-4.2). T4 22.1 (12-22.). I am constantly increasing and decreasing my meds . So I’ve been told again to stop alternating between 100/125 . I wasn’t prepared to drop to 100 every night so Instead I have been taking 100 for two nights and 125 every third night but that isn’t working ... my body tells me when I am undamedicated and already I am feeling it. I just don’t know what to do

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NickyUk
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shaws profile image
shawsAdministrator

I am not medically qualified but your doctor is concentrating on the TSH alone and they've been told if it is below range we'll have a heart attack. Considering that someone who has had their thyroid gland removed due to cancer have to have a suppressed TSH and they don't seem to come to harm.

Go by how you 'feel' rather than what the doctor dictates otherwise you are on a continuous merry-go-round of increase/decrease/increase/decrease.

shaws profile image
shawsAdministrator

Are you leaving a 24hour gap between last dose of levo and test? Is it at the earliest possible, and fasting (you can drink water) ?

SlowDragon profile image
SlowDragonAdministrator

Just dosing according to TSH and FT4 is inadequate

Your previous post shows you have low FT3 and poor converter

Low vitamin D and low folate, plus you have Hashimoto's

Have you improved your vitamin D and folate by supplementing vitamin D and good quality vitamin B complex

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Once vitamin levels are all optimal then FT3 may improve

But many with Hashimoto's find we need to be strictly gluten free

Addition of small dose of T3 may be necessary

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

tukadmin@thyroiduk.org

Professor Toft recent article saying, T3 may be necessary for many otherwise we need high FT4 and suppressed TSH in order to have high enough FT3

rcpe.ac.uk/sites/default/fi...

NickyUk profile image
NickyUk

Hi everyone and thank you. I am taking vit d now but not had levels checked yet. Is folate iron? Because I had my iron done and it was 69. Labs won’t do ft3 and neither will endo. I will ask to be referred back and let him see my last ft3 results

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