Symptoms I get : Hi can anyone else relate to my... - Thyroid UK

Thyroid UK

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Symptoms I get

Gcart profile image
6 Replies

Hi can anyone else relate to my symptoms . Keep it short but symptoms OFF T3.

Bowel just doesn’t work without suppository. Even though it’s there 😕

Can t wee very well even though I need desperately to go it just empties very slowly

Hardly any sleep because of flushing constantly . Any exhursion cause palpatations.

Low mood lack of concentration is also part of it.

Concerned about continuing to obtain T3 from abroad reported to GP for help re anxiety as a result.

She said “why was I worried about that and everyone does well on T4 “

Never felt so desperate .

I realise the future is unknown for lots of people but this maps it out clearly. .

Concordia are the pits 😞😞

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Gcart
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shaws profile image
shawsAdministrator

Tell GP she should log onto healthunlocked Thyroiduk.org.uk and she will actually see a number of 80,000 not feeling well on levothyroxine.

She will find a number of posts where they've recovered on T3.

If you were prescribed T3 and it has been withdrawn read this from Lyn Mynott:-

healthunlocked.com/thyroidu...

Gcart profile image
Gcart

The worst was she was indifferent

in reply to Gcart

The nhs lulls people inot a false sense of security asense that you are being looked after when you are not. Dont be stubbern Ghart you know what you need, there is no point in you being ill when you could get some T3 yourself. They don't give a damn and you wont be able to make them.

Mamapea1 profile image
Mamapea1 in reply to Gcart

You obviously would be better to obtain your own T3 and ignore the ignorant GP. It's very disheartening to be treated with indifference, as I know only too well.😔

As an aside, what are your B12/folate levels like? The bladder problems you mention could be attributed to low levels, as I recently discovered, and I had exactly what you describe.

Even when desperate, I only had a certain level of flow. Also I suffered leakage, (usually a.m.), as the sphincter seemed slightly open, but I could never increase the flow when I got to the loo 😳

It's difficult to find the root of each symptom when they often overlap or coincide.

I was never diagnosed with a B12 deficiency, just folate, but I clearly have a fairly serious one, which I'm now addressing myself. Good luck with sorting it all out ~ it's awful that we have to go through this minefield of ill health with only disbelief and indifference from medics. 🍀 x

Gcart profile image
Gcart in reply to Mamapea1

Hi Mandyjane. I am happy to obtain my own but I am finding it more difficult. Greece has a problem then I used Germany now they have been taken over by a bigger firm.

Just scared for the future

Gcart profile image
Gcart in reply to Mamapea1

Thanks for your reply, yes I am addressing the vits and minerals .

I was like this for ages before TT for cancer. Was catherterized for months it was awful. .

No symptoms if you have thyroid cancer, my foot!

What do they do to earn their salaries ?!!!

Very concerned about the future

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