Crazy itch: I'e had increasingly bad itching in... - Thyroid UK

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Crazy itch

LibrePeau profile image
10 Replies

I'e had increasingly bad itching in my whole body over 20 years, mainly at night. It used to just last for 3 hours but now it can last for anything up to 8 hours. As a result I can't sleep with natural or prescription medications. I only used to get it (and a debilitating migraine) if I didn't stick to a really strict diet. Fasting for up to 3, then 4 days got rid of it. Now I get it most nights no matter what I do or don't eat.

I've seen specialists for years to no avail. I was diagnosed with 2 abnormalities on the MTHFR gene which has led to Hypothyroidism which can cause itching. The medication I take for this has not helped the itch though.

What is also frustrating is that most of the professionals I see think it must all be psychological because they can't diagnose the cause. It's only because I meditate and do Mindfulness and positive thinking that I haven't gone crazy with it.

Help please someone.

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LibrePeau profile image
LibrePeau
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10 Replies
Caroline888 profile image
Caroline888

Hi LibrePeau

I do sympathise. I had an itch (also a weird crawling sensation) extending over one hip and thigh every night for twenty-two years, which I attributed to menopause and which disturbed my sleep. I found aloe vera gel from Holland & Barrett helped considerably. I don't know if that would be helpful for you, but perhaps worth a try?

Interestingly, my itch completely disappeared about two months ago after being diagnosed with Hashimoto's and six months into treatment with levothyroxine.

Hope you can find the answer soon.

Best wishes

Caroline

SlowDragon profile image
SlowDragonAdministrator in reply toCaroline888

Sounds like low B12 , extremely common when hypo.

b12deficiency.info/signs-an...

Caroline888 profile image
Caroline888 in reply toSlowDragon

Was this answer meant for me, SlowDragon, or perhaps for LibrePeau? If for me, my B12 is slightly above range and has been for well over a year at least. I can offer no other explanation for the disappearance of the strange crawling/itchy sensation - I feel convinced it was a symptom in my case of underactive thyroid and that it has resolved due to treatment with levothyroxine. After all this time I still cannot believe it has actually gone away - it feels nothing short of miraculous!!

Hope you are keeping well.

Best wishes

Caroline

LibrePeau profile image
LibrePeau in reply toSlowDragon

Apparently tB12 is fine.

LibrePeau profile image
LibrePeau in reply toCaroline888

I've been on thyroxinfor5 years.

SlowDragon profile image
SlowDragonAdministrator

As you have MTHFR have you full investigated B12 by testing Active B12, MMA and homocysteine levels

nutris.viapath.co.uk/pages/...

List of B12 symptoms

b12deficiency.info/signs-an...

Are you on Levothyroxine? If so is one brand better than others? Have you tried taking antihistamines

Tried gluten free diet and/or dairy free diet

What are your recent results for TSH, FT3 and FT4 plus vitamin D, ferritin, folate and B12

LibrePeau profile image
LibrePeau in reply toSlowDragon

Results say B12 ok. I'm on gluten and dairy free diet. Will see about Active B12, MMA and homocysteine levels.

humanbean profile image
humanbean

What kind of diet do you follow? Presumably you are eliminating or restricting certain types of food?

LibrePeau profile image
LibrePeau in reply tohumanbean

No gluten, dairy, soy, sugar or additives.

humanbean profile image
humanbean in reply toLibrePeau

Have you ever been investigated to see if you have high levels of histamine? Have you ever tried taking anti-histamines to see if they help? Have you ever tried lowering your histamine production by reducing or eliminating high histamine foods?

Do some research into histamines and being histamine-intolerant. Histamine intolerance can increase the risk of itching. The amount of histamine in the body can be reduced by avoiding histamine-rich foods, and this may be helpful for reducing the itching.

greatist.com/health/why-we-...

healthline.com/health/hista...

mindbodygreen.com/0-11175/e...

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