I'm 27 years old...For the last couple of weeks I haven't been feeling myself. Symptoms: Heat intolerance, causing sweats and clammy skin, leg tremors, hand tremors (sometimes). I often feel down, emotional wellbeing is all over the place. I just want to spend all day in bed.
Went to see the gp (locum dr) - originally when i told her about my first 'episode' she said its due to low blood pressure/blood sugar and just make sure I eat something in the mornings.
A few weeks later, my symptoms were not improving and I am feeling the same. They haven't worsened however im not improving and they are becoming more frequent. Off i went to the gp again... they ordered bloods, including TSH - this came back very low 0.01ml/u . She then had this re-tested a few days letter along with testing free T3,T4 and thyroid peroxide antipodies. results showed i have a very low tsh, high t4 and high t3 (not as high as t4), antibody tests came back negative.
After researching I understand that the most common cause for Hyperthyroidism is an autoimmune condition called graves (I am sure most of you are aware). That being said, my antibody blood tests were inconclusive.
I am just wondering if i can get some advice please from any of you who have gone through something similar. I am due to get married in August, Gp prescribed me Carbimizole and has referred me to an endocronoligist however wait times are 2 months. I also have excessive health anxiety which i find extremely hard to control...
What are my next steps?
Thanks in advance
Written by
Maryam28
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You need to get a copy of your blood results including lab ranges.
Go and ask the GP surgery for them. You are entitled to a copy by law and they can no longer charge you for this.
Better still you can sign up via your surgery to be able to access your blood results on line. This is what I do now to see my results.
Once you have them post them on here and the experts will help explain what is going on.
If full thyroid has not been tested pay private for bloods, medichecks and blue horizon offer this service and you get the results direct to you, make sure you test your vitamin levels as well.
Don't be fobbed off by the GP or Endo's. One GP told me it was all in my head, few weeks later I went back and saw my allocated GP (he's in demand) did full thyroid, which turned out that My TSH was 12.2 and others out of range, so it wasn't in my head after all (which I knew).
I paid private to see an Endo as well, he was as much use as a chocolate fireguard and a waste of money.
The first GP i saw was a locum, so I disregarded it..and went back to see my actual regular GP..so far they have been good and did get my bloods testes and printed for me. .my concern is that they have diagnosed me with HYPERT however don't yet know what the cause is... I don't want to wait 2 months to find out!
If you don't want to wait 2 months (neither would I) then post your blood results on here including ranges.
I suspect they have not tested everything you need to see what is going on.
If they haven't, then pay for private blood testing to be done, as said medichecks and blue horizon offer this. You can either pay extra and a nurse will visit your home (blue horizon offer this) although I have read that they can not guarantee early morning appointments (you need thyroid testing as early in the morning as possible) or you can pay to visit one of the local hospitals they have on the there list.
There is finger prick testing as well, but some don't find that easy, or do you know any friends that are nurses that can take blood.
The results don't take long to come back and they come direct to you. You can even request that a doctor comments on the results.
People will give you advice on here and if your GP is understanding, mine is, he will listen to what you have to say.
I have only learnt all of this from this forum, which has helped me no end.
She tested the wrong antibodies. TPO ab is for Hashi's. For Grave's, you need to test TRAB, or TSI antibodies. Unfortunately, most doctors don't seem to know the difference.
Hello, well funnily enough I did my own research and went to the GP again this afternoon. I asked about the rab test as I Ready they are 98% certain and 99% specific in graves. He said the endocrinology tests those, they have done the bloods they can do... I have to wait a while for an endo appointment !
I'm afraid I'm not very clear on that one. I haven't been able to work out the difference. Why not post a new question and ask exactly that. It might attract the attention of someone like helvella , whom I'm sure would be able to explain.
Has your doctor given you any treatment? It is normal practice for GPs to pass on the treatment of people with hyperthyroidism to endocrinologists. But you might have to wait a few weeks, and in the meantime you need something to keep you going while you wait for the appropriate help. You should at the very least have been given a prescription of beta blockers to slow down the heart if it is going much too fast. It is also possible that a GP might supply you with a low dose of Carbimazole, but I'm really not sure about that. I'm not hyper so I'm not familiar with all the ins and outs of treatment.
But beta blockers are definitely within the remit of your GP to prescribe.
Yes dr prescribed carbimizole to help with my symptoms until I see the endocrinologist - which yes will be within a few weeks... generally they have been good however I wish things were faster, as I’m sure everyone does .
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