Please help with test results. Originally, gar... - Thyroid UK

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Please help with test results. Originally, gardeniasmell had problems on site, reassign as: beachytoes2u....same person, with same problems

Beachytoes2u profile image
25 Replies

Gardeniasmell=beachytoes2u

Please help with any suggestions for vitamins, supplements or support in addition to 60mg armour-bio

TSh:7.82. T4:7. T3:2.7

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Beachytoes2u
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greygoose profile image
greygoose

You are extremely under-medicated! You need to increase your Armour by 1/4 grain every two weeks until your TSH is under 1, and your Frees in a place that make you feel well.

It's not a good idea to take supplements without testing. Ask for vit D, vit B12, folate and ferritin to be tested and supplement according to results, and add in cofactors (post results on here for help with that).

Have you had your antibodies tested? Do you have Hashi's? :)

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

How do I bring thing info to the attention of my dr.? At my last appt., I had a list of all my issues, she lowered the armour, 60 to 50mg. If I'm not mistaking I should be increasing? My next appt., July 23. I have changed the supplements as u suggested, I feel so much better. Can u get documents or some proof to bring to the Dr? Or, double up on armour, 100mg myself? For some reason over weekend, my first site was locked out, it's happened 2x? Reason for 2nd, account....i only wanted info & help. Thank you

greygoose profile image
greygoose in reply to Beachytoes2u

As I said above, you can only increase your Armour by 1/4 grain every two weeks. No doubling up! But, I can't understand why your doctor reduced your Armour, that doesn't make any sense. She's obviously very ignorant, and there's not much you can do about that.

I didn't suggest any changes in supplements, I suggested you get tested for nutrients. So I don't know how that made you feel better.

If you have problems with being locked out of the site, you should contact HealthUnlocked and let them know. Info and help is all we're able to give. But, if you want specific documents, you should state what you want in a new question, because this one will be too far down the list, now, for others to see. I don't have the documents you require.

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

You helped advising no kelp, supplements (magnesium, zinc) stop or take at night. I previously had horrible stomach aches. Which have stopped after I took advise. Is there specific medical guidelines, or a site something I can have for my own knowledge/show Dr, where my blood & nutrient level should be? Where I want medication to help get me to? I'm asking, as this is the first & only place that understands what I'm feeling like, and possible solutions. Without this, I had no solution, felt like a walking shelll of myself, doom in my future. Thank you, for noticing my questions with a kind reply. Life is tough, if my dr., dosent get it where do i get help?

greygoose profile image
greygoose in reply to Beachytoes2u

Doctors rarely do get it, because they've been trained not to. They believe we're all making a fuss about nothing. After all, we are just hysterical women!

One possible exception is Dr Toft. I don't have a copy of his guidelines, but he says something about needing to take as much thyroid hormone as you need to be well, not what your doctor thinks you need - there's a huge difference. I think you can buy his booklet in Pharmacies. Or on Amazon :

amazon.co.uk/s/ref=nb_sb_no...

There is no exact spot in the range you need to aim for - ranges vary, anyway - but most people need their TSH under 1 and their FT3 up near the top of the range to feel well. But, the TSH is of no importance, and that's where most doctors go wrong, by dosing by the TSH.

Nutrients, it depends which one - ranges also vary. But, as a general rule, in the UK, ferritin and vit D are best at about 100, folate should be at least mid-range, and B12 over 500.

But, remember, guidelines are just that, they are not rules, and treatment should be adapted to each individual patient. However, most doctors are either too ignorant, too lazy, or too scared of losing their jobs to treat properly!

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

A TSH of 1 and im almost at 8🤤no wonder i feel awful! I ALSO take, compounded hormone replacement, estrogen, progesterone everyday, I thought some of what I felt joint pain was due to loss of hormones, thus my replacement....alot of loss complaints for women reflect same as thryoid. However, it also as some have suggested immune, or what I can't understand....hypo and hashimotos are they different? Or they mean the same? Messed up thyroid?

greygoose profile image
greygoose in reply to Beachytoes2u

Autoimmune. Hashi's is an autoimmune disease, meaning that the immune system attacks the thyroid, mistaking it for the enemy. It slowly destroys the thyroid, causing the person to become hypo. That is the most frequent cause of hypothyroidism, but you can become hypo from other causes - mainly unknown causes. You should ask for your antibodies to be tested - TPOab and TgAB - to find out if you have Hashi's. But, the treatment is the same.

Do you take your HRT at least four hours away from your thyroid hormone?

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

I take my armour, wait at least 1 hour, before green tea supplements, etc. Am I supposed to wait 4 hr., then take hrt? What about cortisone? How can I find it, and take it? My adrenals, I'm sure we're used up yrs ago. I slowly add my supplements thru the day hoping to have a day to get somethings done. I live alone, a shell of who I was. The dr., wants antidepressant taken, but it's almost too much, what is your opinion?

greygoose profile image
greygoose in reply to Beachytoes2u

I don't think antidepressants will help. What you need is an increase in levo!

But, yes, you are supposed to wait four hours before taking your HRT. The oestrogen will block the absorption of the levo.

Do you mean HydroCortisone? I wouldn't tell you where to find it, even if I knew! You should not self-treat with HC, you could shut your adrenals down forever. Try taking a glandular, like Adrenavive. And make sure you get plenty of rest, plenty of B vits (get B12 and folate tested first), lots of vit C and plenty of salt.

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

Thank you, I started the 4hr wait today, put the call into dr., yesterday for new blood test. As I don't return to her again, mid July. The hospital where I go, is #1 in the state, and #3 in the USA. They do have a thyroid dept., but I need to be referred, I will. At this point, seeing where my # are, the small amount of knowledge I've learned, she's treating my thryoid incorrectly, need a dr., who is a specialist. At the rate I'm going (1yr) trying to work on correcting + feeling good I'm emotionally exhausted, frustrated. I live alone in a house, got so much to do it isn't getting done because of my thryoid medication isn't correct. Stupid brain fog, now has a name. I'll up my c today, 2,ooo mg? Thank you for the help.

greygoose profile image
greygoose in reply to Beachytoes2u

2000 mg is a start. But, you can go a lot higher than that. You need to work up slowly, though, because it can cause diarrhea.

andy97 profile image
andy97 in reply to greygoose

Why is it so important to “increase slowly”, do you happen to know exactly what happens if one “does not” increase slowly. Do you happen to know,or is this just a rule to follow?

greygoose profile image
greygoose in reply to andy97

Because hormones - all hormones - work slowly, take time to be fully synthesised in the body. It varies with each hormone, how long it takes. For T4 it's six weeks. For T3 it's about two weeks. But, with T3 you have to remember that effects can continue to accumulate long after that. Which is why we suggest that at a certain point you hold for six weeks and retest. With T4 it's longer because it has to be converted into T3.

Imagine, if it takes T4 six weeks to be fully absorbed and converted, you start at 50 mcg and you test at four weeks, your FT3 will come back at a certain level - say 3.5 (3.1 - 6.8) - and you think, oh, I need an increase. Right, increase levo by 25, four weeks later, levo increase is only partially absorbed and converted, but the original 50 has continued to be absorbed and converted. So, if you test after only four weeks, you get, say, 45 (3.1 - 6.8). Oh! need another increase! So, you go on like that until your FT3 reaches 6.8 (3.1 - 6.8), and then you say fine. I don't need to increase any more. But, your actual level of FT3 is lagging way behind the level on the last test, and continues to rise. So, you start to feel over-medicated. You don't get another test until the following year, because your doctor believes you are optimal. But, unbeknown to you, your level continues to rise. Until, one year later, your level comes back at 7.9 (3.1 - 6.8)! And your doctor accuses you of abusing your hormone, and wants to stop your levo, etc.

That's an imaginary scenario, but you get the picture. Plus, of course, if you give the body too much, too soon, you will stress your body and make yourself feel ill. Remember, the body has been struggling along for probably quite a long time, with not enough hormone, and has adapted to that situation in many ways. Suddenly, it starts getting more and more hormone, and it can't cope! What's it supposed to do with all that hormone??? And some cells start getting too much, whilst others don't get any at all, and you start getting hypo and hyper symptoms at the same time, and you really do not feel well.

So, for all sorts of reason, you need to start low and increase slowly. It's not just some mean person, who likes to see you suffer, making up unnecessary rules, it's based on how your body reacts to too little and too much hormone, and observations that it gets better quicker, by going slower. :)

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

💃great! The most info that has made sense regarding what the # mean, thank you! I've called my primary dr., asking for a new blood test in response to her lowering my armour 60mg to 50mg, feeling not great, my actual face/face isn't until mid July, another 8weeks. No good, I'll ask for the test to include, B12, ferritin, vitamin D...ill find some actual site reflecting numbers of prime numbers. I'm in USA, the hospital is in S.F., rated #3 in the country! They've got a thryoid department! I'll ask for the referral, for gosh sake! I'm irritated to be left on my own requesting so many times to start with the blood, I was sick, and still am! Thank you for helping! Anyone, knowing sites with numbers of suggestion, as proof I can bring with me, please suggest. Many mahalos

greygoose profile image
greygoose in reply to Beachytoes2u

You're welcome. :)

greygoose profile image
greygoose

I don't know what problems you had with the site, but your profile as gardeniasmell is still here with access to your last post :

healthunlocked.com/user/gar...

Your new profile is here :

healthunlocked.com/user/bea...

Just in case you have trouble finding that. :)

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

You've given me a load of info, along w others on the site. I'm so thankful, u have no idea the effect it has made, people understanding, giving easy to understand info/site info all of it. I've live back in the states for years, this is the nicest group, giving/compassionate/encouraging I haven't felt/heard in a long time. Many mahalos to those💟🌺🌴

greygoose profile image
greygoose in reply to Beachytoes2u

You're welcome. :)

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

That site erased, it's combined,

beachytoes

greygoose profile image
greygoose in reply to Beachytoes2u

I hope you made a note of all the advice you were given on the other profile, before you deleted it. :)

It's really not a good idea to give your email address on the forum. This page isn't even private, so the address will be available to the whole of the internet.

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

Ok, I've corrected that error, and I thank you for pointing out my error in exposing😲

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

My first account, prior to having it shut off I did note all the reference sites/books that were suggested. Do you have a favorite book on thryoid issues? I want to again, 💟 you for pointing out how I gave too much info out! I deleted&corrected as to the time I was directly exposed....i can't do anything about it, right? Thankfully you caught it as soon as you did. I can only hope no weirdos reach out. So far, so good....ill keep it on the positive side, more people are like you, looking out for the not "web,computer, wise" as I'd like too. Many mahalos with a big hug finding my dumb error. Have a great day💐

greygoose profile image
greygoose in reply to Beachytoes2u

You're welcome. :) Seems to me a perfectly normal thing to do. But, I don't think many weirdos will have come along in that short time, so I wouldn't worry too much. Just be wary of emails from people you don't know - which you should be, anyway! :)

Favourite book… Well, I think I'd have to say Dr Broda Barnes 'The Unsuspected Illness'. An oldie but a goldie. It set me on the right path to understanding what was wrong with me. It's full of information, but well written and easy to understand. :)

Beachytoes2u profile image
Beachytoes2u in reply to greygoose

Thank you, I'll find that book to start off, you've given such nice positive info, along with several others going beyond with detailed, specific replies. I can't say enough, as I'm alone, the people I do talk with have no idea what I'm talking about. My primary, Go it was pointed out (by you) treating me in the wrong direction. This site, is peace to my mind of many "why"

Just simply, thank you for taking time from your day, to read my post (very scattered) and reply.🌋

greygoose profile image
greygoose in reply to Beachytoes2u

You're more than welcome. :)

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