Help with test results please: Hi all. Could... - Thyroid UK

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Help with test results please

Mannequin18 profile image
11 Replies

Hi all. Could someone please help with test results.

I am taking 150mg of Levothyroxine. And B12 injections every 3months. Plus variy other meds. I have had several X-rays and blood tests, all are confusing. X-rays on my spine show severe damage to the lower back. Critical knee and hip damage. I need both knees and both hips replacing. Blood tests reveal problems. But on the top of all these tests is written "no further action". I have been in severe pain with sciatica for 23years, with little to no help from GPs. And now I am taking care of a severely Ill person. Some days I can't take care of myself.

Sorry for the rant.

I have several photos of results if anyone can help. Thank you.

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Mannequin18
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11 Replies
SeasideSusie profile image
SeasideSusieRemembering

Mannequin18

B12 is high because you have injections, presumably you had one not long before this test.

Folate is OK, it should be at least half way through range, yours is a little bit short as half way through that range is 8.85

Ferritin is on the low side, it's said it should be half way through range but I've also seen that for females 100-130 is good.

The others are all in range.

Mannequin18 profile image
Mannequin18 in reply to SeasideSusie

Thank you for explaining that for me. I am amazed at the knowledge on this great forum.

MaisieGray profile image
MaisieGray

Mannequin18 The comment "no further action" is there because all your results are within range, with the exception of B12 (and presumably the requesting Dr would have noted on the blood request form that you are receiving injections, and hence explaining to the Lab why the level would be high). It doesn't have any connection to your ongoing need for treatment for your back issues etc, if that is your concern; only that in NHS terms at least, nothing medically needs to be done to address those particular results. (Although as has been mentioned, you may prefer to optimise your folate and ferritin).

Mannequin18 profile image
Mannequin18 in reply to MaisieGray

Thank you for your reply. Everybody is so informative. It's really great having all this information.

SlowDragon profile image
SlowDragonAdministrator

You need vitamin D tested

vitamindtest.org.uk

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

What are your most recent TSH, FT3 and FT4 results?

Do you have high thyroid antibodies?

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Mannequin18 profile image
Mannequin18 in reply to SlowDragon

Thank you for your reply. I have B12injections every 3months. My present doctors only test TSH. And my last one was .54. So was in range. I have never had D vitamin tested. Am I in my rights to ask to have it done.

Thank you for imparting your knowledge.

Mannequin18 profile image
Mannequin18 in reply to SlowDragon

Thank you again. I do have Autoimmune Hypothyroidism. The doctors I see at the moment only test TSH. And not the full panel.

Mannequin18 profile image
Mannequin18 in reply to SlowDragon

My last thyroid test was TSH 0.54. And was within range. And I did what was suggested on here not taking meds for 24 hours prior to tests.

SlowDragon profile image
SlowDragonAdministrator in reply to Mannequin18

Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood

Vitamin D test

vitamindtest.org.uk

Just testing tsh is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Come back with new post once you get vitamin D result and full Thyroid results including FT3 and Ft4

Mannequin18 profile image
Mannequin18 in reply to SlowDragon

Thank you for such a detailed description.

I do have stomach problems, and have gone gluten free in the past month. There is less pain. I tried some pastry yesterday and was crippled by the pain.

So it all adds up. My GP only gave me Omeprazole. I questioned the fact that I already have low acid, and I was worried about taking them. He said take when needed. So some GPs don't seem to understand.

SlowDragon profile image
SlowDragonAdministrator in reply to Mannequin18

For "some" read "almost all" GP's don't understand that this is LOW stomach acid.

thyroidpharmacist.com/artic...

drmyhill.co.uk/wiki/hypochl...

scdlifestyle.com/2012/03/3-...

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