I have been offline for a while because of moving house, and now having to get to grips with a new GP. Probably nobody has missed me but I've missed you!
I would appreciate any comments on my latest thyroid test please:
TSH: 32 (she didn't give me the range and I forgot to ask as she phoned me and I wasn't expecting it). I know of course that it's too high, but this time last year it was 150 +. On a TINY dose of T3 - can't tolerate more - it went down to 95, then 40 about a month and a half ago. My main aim, after trying four times to get back on Levo and feeling like hell, and also trying Erfa and Amour with much the same effect, was to find something, anything, I could take without feeling so much worse. Taking nothing at all wasn't an option - after initially feeling loads better for about 6 weeks after ceasing the Levo, I then of course felt worse and worse and worse, until plainly something had to be done. It took from July to December 2012 to finally retrial T3 after initial failure and trying 2 NDTs, with the patience and help of my lovely private endo who sadly is now hundreds of miles away.
I didn't expect T3 to suddenly cure everything - I had no expectations of the 'lightbulb moment' that many speak of when on T3, and expected a long haul. I take my dose at around 4.30am which seems to have the least bad effect.
T4 in any shape or form, synthetic or natural, seemed to be a no-no. I hoped that even if it took ages, the falling TSH would eventually have some beneficial effect. The rate of descent seems to have slowed down now and I'm wondering if I should try to add in some T4, in view of the low result. Or is T4 largely irrelevant if you are on T3?
The new GP so far doesn't seem to think the low T4 is anything to be concerned about, although my former one had said I should try to up the T3 or add some Levo. I am still pretty loath to try Levo again - but I did get some Naturethroid (as it's supposed to be hypoallergenic), and wonder if it really is any different to the others. If I take anything that disagrees with me the results are pretty devastating, so I am undecided. Although the way I feel has improved since last year, it isn't consistent and I can't say I feel great, so If I'm honest I'm a bit scared to try any T4, although I know sometime intolerances can fade over time and you can re-introduce things that might have formerly disagreed with you.
T4: 7.1 (7.9 - 20)
T3: 5.1 (3.8 - 6.0) The highest it has ever been, even when I was on Levo and felt more or less 'OK'. It was then barely in range at 3.6 (3.5 - can't remember).
I would be grateful for any comments, advice or tales of other people's experiences. Many thanks.