Hi I'm a first time poster here and was hoping I could get some insight on my condition. Please excuse my very long post.
I'm a 33 year old mum of two,and have a multinodular goitre that was diagnosed back in 2013 with the consultant radiologist stating that my thyroid was extremely inflamed, and would need to be removed at some point. His report recommended a referral to an endocrinologist, as well a nodule biopsy. On speaking to my GP, I was informed that they had essentially vetoed his recommendations, and said I was fine and no further tests or consultations were needed.
Fast forward to 2017 and my already thinning hair was now so bad my scalp was visible, my fatigue was indescribable, the anxieties, insomnia and depression so extreme, the weight fluctuations had increased, as well as feeling constantly cold, the dry skin was on another level, and the low immune system meant I was getting sick every other week.
In October 2017 I had a particularly nasty cold which left me in bed for a week, three days later I had suddenly lost sensations and feeling in my three fingers on my right hand. The nerve pain was indescribable, and it left me unable to even hold a pen or dress myself. I went to a private neurologist who ran a battery of tests and scans and pretty much everything he could think of- everything was coming back as normal. By this point the numbness had spread to my left foot. Again, all tests were coming back as negative apart from my Thyroid Antibodies which were a whopping 200 as well as my ANA at 132.
It has now been 8 months, and although there have been some slight improvements to the numbness, I'm still far from well and normal. I have asked my doctors to consider my previously diagnosed goitre and Thyroid inflammation as a possible basis for hashimoto's and the possible cause for my current issues, but keep being dismissed and told that Thyroid doesn't cause neuropathy.
I have now been offered a steroid infusion of 500mg as well as a daily dose of 20mg for 3-6 months to try and reduce the inflammation which they believe is causing the nerves to be compressed and in turning causing the neuropathy.
I've been told that my symptoms don't fit any particular auto immune disorder, but they're pushing me to take strong immunosuppressants like methodextrate which I have firmly refused. I'm now really depressed and feel like there's no hope left. I just would really like to hear any of your thoughts or advice on my case.