Private Tests done 10 months ago that NHS consultant refused to look at ( in response to SlowDragon)

[Farscape]

Hi Slowdragon

This has the relevant tests I think you mentioned and also antibodies that you asked for previously.

Im not in a financial position to repeat these tests still paying a loan back.

[shaws Administrator]

Just in case I will link in SlowDragon . If we want to alert a member we have to add an @ before name and after the first few characters a selection appears below and we click on the one we want. The 'name' turns blue after we post.

[Farscape in reply to shaws]

Thankyou Shaws I did ask but think it got missed in other posts. I'll get there with some help. So should I still do that in the title post that's what I was unsure about Shaws?

[shaws Administrator in reply to Farscape]

Don't worry Slowdragon will respond when she reads your post. She will link into your post when she clicks on the alert button (the bell at the top which turns red to draw our attention to a response).

[Farscape in reply to shaws]

Thank you Shaws, appreciated.

[SlowDragon Administrator]

Obvious these tests are now quite old

Vitamin D could be higher. Around 100nmol, certainly above 80nmol

If supplementing vitamin D we should test twice year - vitaminDtest.org.uk £29 postal kit

Many of us with Hashimoto's prefer Better You vitamin D mouth spray as it avoids poor gut function.

Your high B12 with no supplements is odd.

I used to have similar and found taking a good vitamin B complex helped. Apparently we can be very deficient in some of the other B vitamins and this can upset them all. Your folate wasn't very high either

Igennus Super B complex is good as full dose is two tablets per day (am & pm). So it's possible to start just on one tablet, in morning ideally. See how you get on just one tablet. Might not need 2nd

If you have not had FT3 tested since 10 months ago, you really need to get tested soon. Just a TSH, FT4 and FT3 would be enough, though if you can afford to include retesting antibodies that might be interesting to see if levels of TPO have reduced since GF

Good that you are now absolutely strictly gluten free. Did you notice any improvements?

Some also need to be strictly dairy free.....but I would get bloods retested first

If FT3 remains low after testing then you may need to consider very small increasing in T3 dose.

But having gone gluten free you may have improved gut function, so very important to retest first.

I would get vitamin D higher first and few weeks later perhaps try B complex. Then look at retesting thyroid 6-8 weeks later

[Farscape in reply to SlowDragon]

Thankyou Slowdragon for all the advice, these are test results from 2 weeks ago

Vit D is now 81.2 it was 100 but I ran out but just restarted taking 1000 Iu with 100 vit k2 solgar brand with both. ( spray sounds a good idea)

B12 is now1460ng/L. ( 191.0 - 663.0)

Folate is now9.2ug/L. ( 3.7 - 18.7)

TSH is 0.07. ( 0.27- 4.2)

FT4 is 18.9 pmol/L ( 12.0 - 22.0)

FT3 is 4.5pmol/L ( 3.1 - 6.8)

Am currently taking 87.5 t4

T3 6.5 ( tyroid tests done fasting)

Couldnt really say if there have been any improvements regarding GF as I'm so unwell

I wondered if you would mind just giving your opinion on a few thyroid tests as they removed my t3 5mg every 4 .5 months over that 18 month period after the heart attack. If you are in agreement I will make a new post. Just didn't want to bombard you. Or would it be better if I made a post directed at the group?

Thankyou so much for your help 😃

[SlowDragon Administrator in reply to Farscape]

Best to make a new post for everyone to see really

Your FT3 is likely too low. FT3 needs to be around 5.5 for most.

Have you tried increasing Levo dose, perhaps very slowly. Perhaps by 12.5 or even 6mcg daily. you are not taking much. That might improve FT3

Medics are going to be reluctant to allow T3 after heart attack

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

[e-mail]

Plus list of recommended thyroid specialists

Your folate is only half way in range. Are you taking a good quality vitamin B complex with folate in?

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

[SlowDragon Administrator]

Also assuming you are still NOT taking any B vitamins or multivitamins then full testing of B12 needs doing BEFORE starting any B complex

See this recent post about indepth B12, MMA and homocysteine for £109

healthunlocked.com/thyroidu....