Background: been Hypo for 5yrs, been doing ok for the last year but started feeling really rough 2/3 months ago. Blood test 4 weeks ago came back “normal” and only tested for TSH (2.17 if anyone interested, saw today my level 12 months ago was 0.56!). I take thyroxine 125/150 alternate days.
So I went to the drs for the 3rd time in 5 weeks to try and get to the bottom of my “normal” TSH level however sill being very symptomatic for Hypo. I was told I need to accept that in the last 6 months the decline in ability to do daily tasks/work is due to Chronic Fatigue Syndrome (but I can’t be diagnosed or referred for another 6 months...). Therefore I must sort out working part time, and minimise my additional activity!? Ummmm... I already fatigue manage, pace myself, eat as healthily as possible, have good sleep hygiene, walk everywhere etc etc but this wasn’t heard at all.
I did slightly lose my temper (read hysterically cry in frustration ) and ask to try a consistent Thyroxine dose (150) for 6 weeks and test again. This has been agreed (but I’m told not to expect miracles) and they’ll test my antibodies (for the first time!!) too. I was recommended antidepressants (declined, I’d rather get to the bottom of why I’m tired not make myself neutral to the situation) and talking therapy (tried it, was told I was one remarkably good spirits for someone battling exhaustion everyday and didn’t feel the need to continue..).
Please tell me I’m not alone in the ridiculous battle to have a GP believe me that it’s my thyroid causing issues? Or am i being totally ignorant and actually I should accept an entire lifestyle change as “normal”?