Do I tell my GP

[Hapyjackie]

I have now been self medicating NDT (Thyroid S) for 3 months and should now be out of levo. I was on 100mcg and am now on 4grains of NDT.

For the first time in years I am feeling more “me”

I no longer wake up tired and have managed to lose some weight normally!

My dilemma is do I fill my prescription for levo and not tell GP or do I come clean and hope she is understanding?

[Greybeard]

If I were in your position I would put off the decision a little longer. 3 months isn't that long. Have you got blood test results that include ft3 taken after you have been establshed on 4 grains for at least 8 weeks? 1 grain is roughly equal to the 100mcg of levo you were on so 4 grains is a large increase.

[Hapyjackie in reply to Greybeard]

Thank you for your answer. I thought it was 35 per grain? Which would still be higher but the problem was levo was not working on the symptoms just on the blood tests! Might try going down a little but I’ll stick at this for now.

Thanks again

[Greybeard in reply to Hapyjackie]

I would get your ft3 tested. A lot of experienced people just go by how they feel, but you are new to ndt so knowing the ft3 isn't over range is important in my oppinion. If you have a look at other posts you will see some estimations of what is typically in 1 grain of ndt, there is t4 and t3. T3 is more potent so that bit needs to be multiplied by 3 I think plus the t4 so it comes out at more like 100mcg of t4.

[Angel_of_the_North in reply to Hapyjackie]

One grain is 60-65mcg levo equivalent. To get 100mcg you have to assume that T3 is about 5 or 6 times as effective as T4 instead of the usual 3 or 4 times.

[AnnaSo]

Where are you taking this information from?

[Hapyjackie]

I am confused? Have you removed a post?

Maybe you could help clear up the equivilant dose levo to NDT (Thyroid S) I thought it was 100mcg = 3ish but am now very confused

Thank you

[greygoose in reply to Hapyjackie]

Yes, not me but someone else. But two responses have been removed. So, as my comments no-longer have any sense, I'll delete them, too.

[greygoose in reply to greygoose]

Sorry, forgot the second part of your question. By my reckoning, one grain of NDT contains roughly the equivalent of 65 mcg levo. But, it depends how much of the T4 you can convert when comparing it with your previous dose of levo.

[Greybeard in reply to Hapyjackie]

Have a look here.

getrealthyroid.com/nature-t...

[NickP1 in reply to Hapyjackie]

I would agree with greybeard. It’s great that you’re feeling good, but it’s worth doing a double check and compare your feeling good to your blood results. It will tell you exactly where your are.

[Hapyjackie]

Thanks I will look into that but prob need to leave it a bit longer to get a true result

[Greybeard in reply to Hapyjackie]

I'm sure you know the signs of being over medicated. Keep a check of your pulse rate and your body temperature, they will be raised if over medicated. Watch out for tremors or a feeling that you have an internal vibration.

[SeasideSusie Remembering]

Hapyjackie

Can you pick up your prescription as normal, but just hang on to it and not get it filled? That way your records show that it is still being prescribed.

I agree with Greybeard that I would give it a lot longer before making any decision to tell your GP.