For those of us who were prescribed or buy T3 More on the joint T3 Campaign

[shaws]

This post is self-explanatory and important for all who would like T3 or have it restored.

thyroiduk.org.uk/tuk/T3-Cam...

[amasufindme]

Thank you shaws

Would it be useful to pin this post for a time?

[Quokka]

Great news, thanks!

[Summer64]

My MP has done absolutely nothing, not even responded to my email or letter so no good going to him. So far no response from Jeremy Corbyn either but I can try Vince Cable if you think it will help.

[shaws Administrator in reply to Summer64]

It is very disappointing if MP has ignored your request. The problem is that people who don't have hypo or family members that they are apt to listen to the 'experts' who deal mainly with patients who do fine on levothyroxine.

Therefore, they may not listen to those who cannot improve their health with levothyroxine alone. May even think we're neurotic - which we could well be if lacking in the hormones we desperately need.

How often, on this forum, have we heard the 'experts' state that T3 or NDT is not useful which those of us who do recover their health on either know it is lies.

Even the Researchers have proven that adding T3 to T4 helps many but the NHS has now withdrawn it due to cost. No matter if they've left many patients 'high and dry' with nowhere to turn.

[Summer64]

The annoying thing with me is that at the CCG's request I had another review with the endo who says I can have it, the GP agrees but won't prescribe as he says should come out of hospital budget, CCG say in writing you can have it if approved by endo and yet they are now chewing it over with their Medicines Optimisation Team and I'm still waiting. Endo did give me 2 months worth to tide me over but the whole thing is absurd.

[Mamapea1 in reply to Summer64]

Absurd and stressful! x

[Summer64 in reply to Mamapea1]

It is stressful and my health hasn't been good since August when this all started. Stress in itself can make you ill.

[Mamapea1 in reply to Summer64]

I agree, which is why I added it to the absurdity! I can't believe that these idiotic so called medical professionals don't understand the effects of the stress surrounding the UNCERTAINTY of getting your life saving meds! Stress has such a detrimental effect on thyroid/adrenals, and is incredibly DANGEROUS!😨

Would they do this to heart or cancer patients? 'Oh well, I know you've had good results with this drug (which costs nothing in reality) and it has given you a quality of life, but we're not sure if you can have it......we'll let you know at some point'.....Aaarrrggg!!😱

Good luck Summer 🍀 ~ I hope the lunatics allow you to have a life soon, in the meantime, try not to worry ~ the stress they are creating will take it's toll ~ don't let them do it to you! (((Hugs))) 💕xx

[Summer64 in reply to Mamapea1]

I've just typed a letter to Vince Cable so fingers crossed lol

[shaws Administrator in reply to Summer64]

Yes, definitely cross fingers. Just think, a few months ago the Scottish Parliament had a discussion about T3 and prescribing of. The thing is we are up against Endocrinologists who refuse to believe that some of us feel more ill on levothyroxine but many improve a lot when T3 is added to T4 and our Researchers have proven this too.

[endomad in reply to Summer64]

My gp wouldn't fund my T3 but endo continued prescription until hospital ccg refused to fund it as gps responsibility! It took 10 months but my ccg has agreed to reimburse the hospital for the cost and my T3 reinstated but my endo feels under pressure/threat from ccg with stricter guidelines. It's all a nonsense as all the extra testing is more cost for them not less!! My mp was brilliant he doesn't understand t3/thyroid but happily bombarded local ccg with my info and won. It is very much a case of not accepting decisions, challenge everything if you feel up to it. Xx

[endomad in reply to endomad]

My point is there are ways they can do it, it's not either or. My gp won't as doesn't want the responsibility but he is funding my endo thro his ccg to pay for it.

[fluffyhat]

Happy to contact my MP, as Im in Scotland- would I need to amend my letter as Im unsure what the current state of play is for us ?

[shaws Administrator]

As Scotland has its own Parliament still write to your local MP. This is a previous post and quite a few of us watched the Debate int he Scottish Parliament:

This is the previous post and Elaine Smith takes T3 only.

healthunlocked.com/thyroidu...