Research into T3, using Gordon Skinner’s data

[Valarian]

I know the hypos amongst us don’t always have a good opinion of

btf, (although there is a lot of useful info there for hypers), but thought this might be of interest:

btf-thyroid.org/professiona...

[Marz]

Excellent - thank you for posting. Let us hope it brings forth fruit 🍏

[shaws Administrator]

I am very happy to note that they are now interested in Dr Skinner's Research and that the Vaccine Research Trust has provided the information required.

It is certainly of interest to most on this forum who have gone through the ups/downs of the trials that Dr Skinner had to go through by appearing before the GMC through complaints made as he was treating patients and not blood tests (as seems to be normal in the NHS).

I believe that diogenes will also be interested as he and his team have also did research.

I take T3 only so it is of interest to me. The reason being is that with levothyroxine I was in and out of A&E with severe palpitations. With T3 only, my heart is calm and beats normally and any other symptoms I had have also disappeared.

[Valarian in reply to shaws]

This is my local thyroid clinic, and in the 10 months I’ve been going there, it’s the third thyroid research project I’ve been aware of.

Whether hyper or hypo, I think we all benefit from the increased profile given to our conditions by having large teaching hospitals engage in thyroid research projects.

[Hidden]

Surely patients should be asked if they want their data to be used rather than this assumption that the NHS can be trusted with it.

[Valarian in reply to Hidden]

It sounds as though the data provided to the research team has been anonymised.

[SilverAvocado in reply to Valarian]

All data used in research should be anonymised. But that doesn't mean consent isn't required!

[SilverAvocado in reply to SilverAvocado]

Have just read it, and the comment on consent is rather sinister! The reasons given are things that are true for almost every research project, and certainly every one using secondary data (data collected by someone else for a different purpose).

Unless this is a small vanity project it will have been looked at by an ethics board. Although its possible it is a tiny project

[Valarian in reply to SilverAvocado]

Not necessarily - some research clearly requires ongoing engagement with the patients (although it would usually be anonymised before publication).

[SilverAvocado in reply to Valarian]

Yes, it's not necessarily the case that the researchers themselves don't know who the participants are. But they will hopefully be very committed to the confidentiality!

Most importantly, each one of those participants should have given their consent to their data being used in that way, AND it will always be anonymised in such a way that no one could guess who they are. For example when I did sociology research, if the participants were patients, the clinic they went to would be removed from the data.

[clubby29]

Hi , my fear is they will take an age to research data if they find out t3 isn’t so bad they will then investigate and trial for another god knows how long. Also remember they will not want to admit they have been wrong about this. Cynical me- you bet

Keep smiling