HELP: I have had a thyroid saliva test done and... - Thyroid UK

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HELP

toph profile image
toph
3 Replies

I have had a thyroid saliva test done and it has come back with a non NHS approved cortisol graph after searching and speaking to a retired GP who is no longer registered on the GMC I have been advised that I have Addison's disease now I went back to my actual GP and told them this and what they did was test my thyroid and all the results came back fine but this is the wrong incorrect information I am very concerned that I will end up permanently disabled from this as my adrenal cortex is more or less destroyed

My GP is very stubborn is there a way I can prove my thyroid has been detrimentally disturbed either through an MRI scan CT scan or whatever I can do can someone please please get back to me so I can get the test done and go back to my GP

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toph
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Peanut31 profile image
Peanut31

Hi toph

By law you are entitled to a copy of your blood results, the official ones with lab ranges, have you seen them, or, did the GP just tell you verbally they are in range.

I can access my blood test results on line via my surgery but, you have to request this and the GP needs to approve (god knows why they need to approve) they are your results.

The alternative is private bloods, medi checks or blue horizon do thyroid checks, they vary in cost depending on what you want.

Blue horizon, you can pay extra for the bloods to be drawn at your property, and or go to a hospital that they have on their books. Some you can use a finger prick test as well.

I would advise, thyroid including antibodies and vitamin levels, iron, vitamin d.

Word of advice the NHS will not treat you unless your TSH is over 10.

I’m being feeling awful but refused medication by a private Endocrinologist despite being diagnosed with Hashimoto’s.

Anyway had recent blood and now all my thyroid results out of range my TSH is 12.2 (range 0.27-4.5), back to GP to request treatment.

Best wishes

Peanut31

SeasideSusie profile image
SeasideSusieRemembering

Addisons disease is adrenal insufficiency so you will have had a saliva cortisol test not a saliva thyroid test. You need to ask your GP to test your cortisol, you will be referred to hospital for that and you may need to see an endocrinologist first.

Can you post your thyroid test results, with reference ranges, so we can see how your thyroid function currently is.

toph profile image
toph in reply toSeasideSusie

OK I will get them from the surgery tomorrow and PM you and put on this discussion thread.

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