Need help

[Hildabaez1986]

Have had thryroid for 13 years i was taking the 125 and started to feel soo tired and sad 2 weeks ago my doctor changed it to 150 my TSH was 0.178 low and my T4 12.8 high and i started feeling even worse soo spaced out and sad very scared and i just wanted to cry.. now i am with another dr he lowered the dose to 50 and i been feeling the same soo spaced out, worried, sad, and i dont recognized how i was before

[Kell-E]

It sounds like you have not been on 50mcg for very long? Has it even been a week?

You need to give it some time for the levels to stabilize and your body to adjust. At least a month if not more...

[Hildabaez1986 in reply to Kell-E]

Yess I just started taking it today! I feel soo anxious, spaced out and tired of feeling like this

[Kell-E in reply to Hildabaez1986]

Just a thought...try skipping it totally for exactly one week. Then you can pick up at the 50 mcg dose. Doing that will lower your levels to half of what they have been and your distressing symptoms should ease up.

[greygoose]

That is so, so wrong. Doses should be reduced by 25 mcg every six weeks, not 100 mcg in one go. No wonder you feel bad.

Do you have the range for that T4? Because 12.8 would not be high on most ranges.

[Hildabaez1986 in reply to greygoose]

Yes I feel soo bad I feel spaced out bad and I somethimes dont recogize myself how i am now like i was before the T4 is 12.8

[greygoose in reply to Hildabaez1986]

Yes, but what is the range for the T4? It's the number in brackets after the result - eg:

FT4 12.8 (12 - 22)

That's a range we frequently see, but ranges vary from lab to lab. So, we need the range to be able to interpret the result. If your range is something like that, then your doctors were very, very wrong to reduce your levo because you were under-medicated!

[Hildabaez1986 in reply to greygoose]

I even change my dr And i honestly dont know what to do anymore i feel soo bad

[greygoose in reply to Hildabaez1986]

Well, the first thing to do is find out the range for that FT4.

Do you have your results from when you were diagnosed?

Have you had your nutrients tested? Vit D, vit B12, folate, ferritin?

Have you had your antibodies tested?

[Hildabaez1986 in reply to greygoose]

4.5 to 12.0

[greygoose in reply to Hildabaez1986]

That's a strange range for an FT4. It is Free T4, isn't it?

[Angel_of_the_North in reply to Hildabaez1986]

Not a usual range for Free T4 - are you in the UK?

[helvella Administrator in reply to Hildabaez1986]

That might be a Total T4 test

(For example, Wiki offers a possible range of 4 to 11 μg/dL.)

greygoose Angel_of_the_North

[greygoose in reply to helvella]

Yes, could be.

[Hildabaez1986 in reply to greygoose]

Soo what should i do

[greygoose in reply to Hildabaez1986]

Well, you need to find out exactly what has been tested. If they've only tested TSH, TT4 and T3 uptake, that's not going to give you any information at all. You will have no idea if you're over-medicated, under-medicated, or what you are. And, you need the numbers for your nutrient tests. It's impossible to advise you without knowing the details.

Is it possible to get private tests where you live?

[Hildabaez1986 in reply to greygoose]

I just posted my lab results

[greygoose in reply to Hildabaez1986]

But there's absolutely nothing on there that pertains to thyroid. No thyroid hormones, no antibodies, no nutrients except sodium and potassium, which are good. I'm afraid those results don't help anybody to advise you on your thyroid problem.

[Hildabaez1986 in reply to greygoose]

My dr just checks on my tyroid

[greygoose in reply to Hildabaez1986]

So, has he tested your FT3? That's the most important number.

Antibodies are to do with your thyroid. The test will tell you if you have autoimmune thyroiditis. It's important to know if you have.

[Hildabaez1986 in reply to greygoose]

T3 Uptake ?? Is that what your asking me for?!

[greygoose in reply to Hildabaez1986]

No, that's an obsolete test that doesn't give any helpful information. Pointless in doing it. It's the Free T3 that is needed.

[SlowDragon Administrator]

Are you in UK?

Do you have results from before dose was increased

You need to know TSH, FT3 and FT4 including the ranges

Also to test thyroid antibodies and vitamin D, folate, ferritin and B12

Post results on a new post when you have them

[Hildabaez1986 in reply to SlowDragon]

Im in the Us

[SlowDragon Administrator in reply to Hildabaez1986]

Hopefully you can get private blood test and/or see good thyroid doctor.

You need to get antibodies tested, FT3 and FT4 plus vitamin levels

Gluten free diet helps many

[hels333]

hi there

It looks like you have only posted the front page of your blood results, because right at the bottom of the sheet you sent us, is the title Thyroid Panel with TSH in bold - so presumably the results of those tests are at the top of the next sheet.

Have you got the next sheet? If not, ask your surgery for the 2nd sheet and post the results here as you did page 1.

best of luck - there are many knowledgeable people here who will help you, so you are not on your own.