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Endocrinology Scotland

Glasgow Scotland Endocrinology experience

Hi to those looking for a good endocrinologist in Scotland. Glasgow in particular, there is none, well maybe Paisley, but this is not Glasgow. We had a brilliant, inspired man in Glasgow , I seen privately back in 2003, who was ostracised by the whole medical profession called Dr Gordon Skinner, I strongly recommend his book to all thyroid patients. Unfortunately he sadly passed away and remains a great loss. I was truly lucky, without him I would have been left untreated.

I am now Polyendocrine patient with Addison's (Primary Adrenal Insufficiency) and Hashimoto's (Autoimmune hypothyroidism) and currently under testing for Primary Immunodeficiency, Happy days. I wont bother to mention the other 16 autoimmune conditions I have acquired along the way.

Exacerbated, in 2015, I wrote to Dr John Wass, the top endocrinologist at the Royal Collage of Physicians in Oxford. He did a telly program on 'you are your hormones', so I copied down his name and used the web. He is lovely, responded immediately, warmly and empathetically and informed me of Newcastle as they are a specialist centre. My GP could not or would not refer me but my consultant endo in Glasgow did, to which I will be forever thankful. See not all bad.

It took me 8 years in Glasgow (Ayr was as bad) to finally get a diagnoses of this life threatening condition even though I had adrenal antibodies from 2007, classic signs and could interpret a test better than they could. The problem was they did not do the test correctly and the half they did do they did not understand, as its rare you 'couldn't have it'. Arrogant and ignorance are the champions of the day. Welcome to Glasgow's post code lottery of care.

Fyi the diagnostic tests range for thyroid was set over 50 years ago based on a relatively small sample of the population. They did not know if they had or did not have endocrinology problems at the time, cause they couldn't. Disappointing eh! Even more disappointing when they 'moved the goal posts' to exclude the border liners.

To the underactive border liners I recommend coconut oil, cold pressed organic. Coconut is a natural source of thyroxine, that why you are eating bounty bars! I recommend it for cooking oil and if nothing else instead of toothpaste (don't swallow it). You will absorb it through the lining of your mouth and it is a natural anti bacterial, reduces stains, your teeth will shine and you will feel a little better. Win,Win!

Borderliner's

What made Dr Skinner different and my current consultant is there use of observational diagnosis and being guided by the patient over the clinical tests for the answer. You/ we need a campaign I suggest:

BRING BACK OBSERVATIONAL DIAGNOSIS, A VET CAN DO IT!

On the thyroid point. I had a underactive thyroid test back in Jan 1997. At the time I was painfully thin and based on my lack of fat (which is classic hypothyroid) although the test was positive I did not get treatment. My lack of thyroxine had made me so exhausted I did not have the energy to eat plus the Addison's was unknowingly smouldering away. Thyroid symptoms are interchangeable. That ignorance, cost me my marriage as I was constantly 'wired but tired'. Ok, more tired.

Having met other Addison's patients with better experiences the endocrinology Scottish expertise seems to be in Paisley and Dundee, the latter has a great department and lead the field in Scotland on Diabetic type 1 insulin pump testing some 20 years ago, which patients all over Scotland are starting to enjoy. Makes me want to move.

I ask, have any of you border liners/ atypical presenters looked at the adrenal gland? What about the pituitary? There is an axis between these three.

My Addison's caused my thyroid problem, treated since 2003. Thyroid treatment made my adrenals worse, but it was the first time in my life I had put on weight, that made me more tired. I was left fighting for life for 15 years and that was very grim, so is the raft of other auto immune problems lack of treatment gave me.

What do you do? Go to endocrinology and print out the diagnostic criteria and symptom list, tick off all that applies and when they tell you, your wrong, ask them what is the next step of investigation for a differential diagnosis to explain your symptoms and hope.

FYI hypos are the unrecognised joy of Addison's, but not the thyroid gland. That's the joy of palpitations.

Good Luck hope some of this helps.

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Interesting on your comment about Bounty bars! Can eat dark chocolate ones any time! Plus I've always said we should listen to our bodies. Dr Skinner was a lovely man and yes sadly missed. I saw him in Birmingham.

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I have Graves’ disease but read your post and have huge Sympathy .. I’m from GLASGOW area ...too

Your advice , experience and huge knowledge will be a great help to others .. and I’m sure they will be along to thank you soon .

A huge thank you from me for sharing your years of struggle and successes too.. as these are the precious pots of gold from which others glean their knowledge and courage

.. that can change their lives.

These are for you fior sharing 💐

I wish you Good Health

Luv mx 🌹

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Oh this is so disappointing to hear. My GP finally referred me to an endo, despite originally being told there was zero chance i have hashimotos. Private blood tests proved otherwise.

I have an appointment with Dr Lesley Hall next month.

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The vast majority of primary hypothyroidism is due to autoimmune thyroid disease (Hashimoto's)

Essential to test vitamin D, folate, ferritin and B12. Always get actual results and ranges. Post results when you have them, members can advise

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut and gluten connection is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP or endo for coeliac blood test first

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

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Dr Skinner is seriously missed - a doctor who healed patients and not ignore their symptoms. He stated that due to the reliance of blood tests that it put patients in a 'parlous situation'.

At the Thyroiduk.org.uk Conference last year, his right-hand woman Afshan and the Secretary to the charity they have set up in order to raise funds as over the past few years since his death they have been collating all of his scientific research. He fought against the guidelines as doctors were taking more interest in the blood test results than the patients' clinical symptoms.

healthunlocked.com/thyroidu...

You should try to contact Dr Toft, a very senior Endocrinologist and he has made remarks recently which we would all agree with. The following link may still be up-to-date:-

healthunlocked.com/thyroidu...

The following was joy to our ears.

healthunlocked.com/thyroidu...

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