I have suffered with muscle and joint pain since the age of 15 (now 24). I have been seen by orthopaedic consultants, rheumatology consultants, physiotherapists, and GP's.
My GP's have been great and referred me onto consultants, however, I am struggling with secondary care and not having any answers. I am thinking this is my fault, as maybe I am not asking the right questions.
A bit about myself: 24, pernicious anemia controlled with b12 injections every 12 weeks, Hypothyroidism controlled well with 225 mcg levothyroxine, Vitamin D deficiency on medication. Recently I have been taken off iron supplementation, however, this happens every 6 months, and no doubt I will be back on them in a few months.
Few results I have managed to have released:
"21/12/2015 - Sacroiliac X-ray
Potential Abnormal Normal left SI joint. The right SI joint as possible early sclerosis in
its inferior component. Does the patient have caner the specific site?
This may represent early
- This result was not even commented on when I went to see the rheumatologist, they said not to worry about it.
"26/11/2015 Serum anti-mutated citrullinated vimentin antibody level = 27.7 U/mL High @ Anti-MCV" - Again, I was told this was nothing to be concerned about and was actually quite low.
"02/09/2014 Plain X-ray spine Potential Abnormal XR Lumbar 02/09/2014
XR Thoracic spine 02/09/2014
History: tender stiff back, without radiation
Normal mineralisation. Very slight mid to lower dorsal scoliosis, concave to the right.
Minimal degenerative lipping present anteriorly and right laterally between D7 and D10.
No vertebral compression or disc narrowing. Pedicles symmetrical and normal and no paraspinal mass.
The remainder of the dorsal vertebrae, lumbar vertebrae and discs normal." - I was told to try out pilates or swimming with this result. I was an active swimmer as a young child and up to the age of 14. At 15, that is when I had complaints regarding my back and joints. I have started again recently, but I am struggling with it. I will keep persuing this however.
My main question on here is if anyone is able to shed some light on these results? I am going private with this next month, however, I want to make sure I ask the right questions when I see the Rheumatologist. I am grateful if you have taken the time to comment.