Red hands and feet: Can anyone help me I... - Thyroid UK

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Red hands and feet

debbies147 profile image
13 Replies

Can anyone help me I currently have red palms and soles of feet and they feel hot , my mouth also feels sore and I generally feel unwell. I currently take levothyroxine for UAT and have hashimotos. Does anyone know if this is related please

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debbies147
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13 Replies
SlowDragon profile image
SlowDragonAdministrator

Could be low vitamins

Have you had vitamin D, folate, ferritin and B12 tested recently. If not ask GP to test

Can you add most recent TSH, FT4 and FT3

Are you on gluten free diet as you have Hashimoto's?

debbies147 profile image
debbies147 in reply toSlowDragon

My TSH was 2.7 and he only tested my iron this time as said rest was ok last year , well his kind of ok not ours!!. Thinking about having a complete panel of bloods privately but have to wait til I can afford it.

SlowDragon profile image
SlowDragonAdministrator in reply todebbies147

TSH is likely too high

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

tukadmin@thyroiduk.org

Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine

See box

Thyroxine replacement in primary hypothyroidism

pathology.leedsth.nhs.uk/pa...

Strictly Gluten free diet helps majority

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels can affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly.

Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

debbies147 profile image
debbies147

I am currently gluten free but only for past month and my TSH has been around 1.7 in past . Thank you

Clutter profile image
Clutter

Debbies127,

1. You are undermedicated to have TSH 2.7 and should ask for a dose increase.

The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.2 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email dionne.fulcher@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

2. B12 deficiency can cause the symptoms so ask GP to check B12 and folate.

b12deficiency.info/signs-an...

3. Angeodema is another possibility google.co.uk/search?q=Angeo...

debbies147 profile image
debbies147

Thank you my b12 and folate have been low in the past but he thinks 2.7 is ok for tsh

Clutter profile image
Clutter in reply todebbies147

Debbie147,

If you click on Reply underneath the post you are responding to the member will be sent an alert that you have responded.

If you feel well with TSH 2.7 that's fine. If not, you are undermedicated and should show your GP the Pulse article and request a dose increase.

debbies147 profile image
debbies147 in reply toClutter

Definitely don't feel well at this level and will print it for doctor . Thank you so much

Hi Debbie, I can't comment re thyroid levels but sometimes I get the same thing with my feet going red and hot, but not my mouth. I am type two diabetic, and have to watch the sugar and carb levels as this can bring on candida. I have to use a special fungal foot cream for athletes foot. Tips you might find useful are to drink plenty of water, avoid hot and spicy foods, and hidden sugars in soft drinks with no added sugar and tonic waters. Alcahol should also be avoided.I have also cut out tannins mainly in tea, as they can affect the iron levels in your blood. I also wash my feet in tepid water and apply my foot cream and also neutrogena hand or foot cream - or peppermint foot lotion from the body shop which cools the feet down. I then wear cotton anklets to stop any mess.

As you know already the endocrine system is closely linked to thyroid and pancreas, and womb, so if it is an overgrowth of bacteria in your gut it can make you feel unwell. If in doubt have a blood sugar test for diabetes.

There is fascinating info on candida yeast inections.com and how to treat it.

The imbalance of hormones can be accelerated by candida affecting the progesterone and oestorgen levels, affecting your thyroid gland. I am using coconut oil to help brain function

and it also helps eliminate candida. The article on yeast explains imbalance in colon bacteria especially with lactobacillus. Some people may be lactase/lacotse intolerant, and find a difference when they use lactase free milk to both thyroid and diabetes.

Best to check your hormone levels with GP.

debbies147 profile image
debbies147

I have had diabetes check about a year ago but someone said it might also be diabetes mellitus. Not sure if test is different for this so will ask GP on Monday. Thank you for replying

denvajade profile image
denvajade

Hi I have red hot feet and hands, I have fibro and RA and put it down to that. A sore mouth can be candida. 😘

debbies147 profile image
debbies147 in reply todenvajade

It's never ending what you can get from thyroid issues. Thanks for reply will be asking go Monday what he thinks, not that he will probably say any of those 😁

mjd_Health profile image
mjd_Health

After years of confusing TSH tests, I finally have a new diagnosis, (Thyroid Resistance). My TSH has NEVER been normal, despite years of levothryxin therapy. I can only find 2-4 medical articles on Thyroid Resistance... but I went to my new ENDO doctor with written & documented problems (I never did have any physical symptoms of hypothyrodism, just a goiter. ) - I have had EXTREME hot flashes for 10 years, and EXTREME temperature regulation problems. I had to withdraw my thyroid meds to get any relief. I showed my doctor on the second visit of my RED HOT feet (Feet on fire). and with the CRAZY high blood TSH, and my report of hyperthyroidism with meds, my ENDO dr finally confirmed my diagnosis. Thyroid Resistance, I read from one explanation that this is both HYPO and HYPER thyroid at the same time. Today, I noted for the first time that I noticed, my hands were deep red. 18 months later, with new meds, I am still struggling to find the right dose. One article I found today, suggests that TR has hypothalamus origin. THIS MAKES SENSE as I have a daughter with genetic problems of hypothalamus function disorders.

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