Relapsing Polychondritis

[Jop123]

I’m just wondering if any others with thyroid problems also suffer with relapsing polychondritis? I’m looking for advice on how others cope with the exhaustion caused by the combination of the usual thryroid symptoms and a polychondritis flare up.

Thanks

[Clutter]

Jop123,

There haven't been any posts about relapsing polychondritis on the forum.

Undermedicated on thyroid hormone you will cause fatigue. If you post your recent thyroid results and ranges I can tell you whether you are optimally mediction on thyroid hormone.

[Jop123 in reply to Clutter]

Hi Clutter

Thanks for the info, it was a long shot as I think it is quite a rare condition.

My last results were not very helpful as T4 wasn’t tested

Serum TSH level 0.71 U/ml (0.38 - 5.33)

I am going to go back and ask to be retested, this time with T4 being measured.

I currently take 125mg Levothyroxine.

I usually cope with the fatigue of the thyroid condition it’s just more difficult when the polychondritis flares up as well. 🙄

[Clutter in reply to Jop123]

Jop123,

You are probably adequately dosed on 125mcg with TSH 0.71 but it would be helpful to have FT4 too. If your GP won't do it you can order TSH, FT4 and FT3 from Blue Horizon or Medichecks via thyroiduk.org.uk/tuk/testin... Medichecks offer #ThyroidThursday discounts.

Ask your GP to check ferritin, vitamin D, B12 and folate too. They're often deficient/low in hypothyroid patients and that can cause fatigue too.

[Jop123 in reply to Clutter]

Thank you 🙂