Who to contact for endocrinologist in my area

[Niklew]

Hi as titles suggests can someone point me in the right direction on here who to contact with seeing recommendations for food endo’s in my area? My GP has done a referral but he actually adviced me if possible to self fund an appointment as he no longer has a clue how to treat me.

[Niklew]

Sorry good not food!!

[humanbean in reply to Niklew]

You can edit your own posts. Click on the v beneath your post, a few options come up, click on Edit, make the changes and then click on Post.

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[SeasideSusie Remembering]

For a list of thyroid friendly endos, email Dionne at [e-mail] then ask for feedback from members for any you can get to. Replies will have to be by private message as no names are allowed on the forum.

[Niklew in reply to SeasideSusie]

Super thank you!

[Clutter]

Niklew,

Why hasn't your GP referred you to a NHS endocrinologist?

[Niklew]

He called me yesterday to say he has done a referral but he actually said if you can self fund I would as the wait is so long. I’ve contacted the hospital where the referral has gone and they have said 4 months. The GP has taken me off meds as he doesn’t think my thyroid needs treating and doesn’t understand enough about adrenal glands. They are at a loss to my symptoms. I’m just starting to really worry now that they don’t know what’s wrong and I don’t know what else to test. My GP doesn’t think there’s anything else we can test ...

[Rmichelle]

It maybe a idea if you could send in your blood work with ranges and let the forum advice you

If you dont have them you are entitled to ask for copies.😊

[Niklew]

I’ve posted my results before and everyone was really helpful and seemed to think I needed to up my levo but I’ve seen two GP’s who said no and I need to come off them..

I went to the GP in Nov’16 about feeling faint, fatigue etc but those bloods came back ‘normal’. 6 months later I starting loosing hair which became increasingly worse by the sept and also starting loosing allot of weight.

They done bloods and said I was hypo:

T4: 12.5 (11-25)

Tsh: 4.83 (0.27- 4.2)

Started on 50mg levo.

Went back 6 weeks later for bloods:

T4 14.9 (11-25)

Tsh 0.81 (0.27-4.2)

The GP said as my symptoms were worsening ( now loosing balls of hair daily) so come off the levo and start anti- depressants.

I didn’t start the anti- dep and paid for bloods through bluehorizon. These just after the latest test with GP. End of January

Tsh 1.53 ( 0.27-4.2)

T4 total 79.4 (66-181)

Free T4 15.5 ( 12-22)

Free T3 4.47 (3.1-6.8)

Anti- thyroidperoxidase abs 11-1 ( <34)

Anti- thyroglobulin abs <10 (< 115)

Ferritin 101 ( 13-150)

Vitamin b12 944 ( marked as high)

Serum folate 45.10 ( 8.83-60.8)

Going by reading through this forum I would think I need an increase of levo but I’ve been off it for 2 weeks now as GP refused and the second one said he wouldn’t have treated a TSh of under 10 to begin with.

I tested cortisol through the 4 saliva tests which showed I was low and morning and lunchtime and just about in range for 4 pm and in range for bed. So the GP done a cortisol 9 am blood which came back as normal:

265 ( 131- 550)

So my Gp has referred me to an endo on the basis of my saliva cortisol to ask the endo what do they think as my 9 am blood was in range.

[CornishChick]

Have just seen this and am no expert but can’t believe they’ve taken you off levo or said your cortisol is ok. Are you able to see a different GP whilst you wait to see the endo?

[Niklew]

Hi!! I’ve booked to see a private endo- I don’t think the GP’s in my surgery ( seen 3) know enough about thyroid or adrenals- I feel sorry for people who just accept their word and not look into it. It’s awful.. can’t trust your own doctors!