Hi everyone, I’m just signing up hoping that I can share some of my frustrations with you??
I was diagnosed with under active thyroid in Feb 2014, after the birth of my boy. However I wasn’t diagnosed for 8mths, so by the time I got to that stage my face was starting to swell and a coma was not far around the corner. To cut a very long story short, and after a continuous fight with my doctor I was on 125mcg for about a year and eventually managed to loose 3.5stone which I had retained after being pregnant. For a time I felt ok - hard to tell with a young baby but things did improve.
However as of September 2017, I started to feel like my “levels” may not be quite so settled, so I went for a blood test. Surprisingly, my T4 levels had spiked so the doctor reduced me to 100/125mcg alternating days. On return to the doctors 8 weeks later, my T4 levels had gone even higher, so at the end of December they reduced me to 100mcg and I am yet to have a test to see what has happened to the levels.
Since I felt the difference in my levels in September, I have also gained a lot of weight very quickly, peaking at around quarter of a pound a day before Christmas. Since January 1st I have returned to the diet that I originally lost 3.5stone on (so it’s tried and tested by me already!) and in the last 5weeks I have only managed to loose minimal weight, and in the last 2 weeks I have remained the same on the scales. I don’t understand why??? I can’t try any harder - I am trying harder than the first time I lost the weight!!!
I’m sick of this issue and really just want myself back...not wanting to sound dramatic but I feel so alone - hence I thought I would write!! Since having this I have lost my self esteem, I have acne, mood swings, tiredness that I can only describe as hurting my bones, and no immune system (tonsillitis, chest infections, 3 colds and pneumonia in the last four / five months - although doctors say that my lack of immune system has nothing to do with my thyroid - I remain unconvinced on that!)
I’m not the kind of person that gives up or gets beaten by something, but this is getting the better of me and I think that I’m getting sick of feeling sick in one way or another....
I just don’t know how to tackle this - my doctors just seem to think that they should get you to a certain level and there we go that will do....but it won’t do??? I feel like I’m going mad 😡
Sorry for the rant..... any advice really welcome!! 🙏🏻
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LexxiiB
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Do you have any test results you can share. If we can see what your levels were we can try and understand why your dose has been changed. Please post any results you have, say what dose you were taking at the time of the test and what it was changed to. Also include the reference ranges, this is important for interpreting results as ranges differ from lab to lab.
Are you in the UK? If so you are entitled by law to your test results, and that includes the ranges. The Data Protection Act gives us the legal right. They are your results, it's your health. Ask at your reception desk for a print out. Don't accept hand written or verbal results, mistakes can be made. If they are reluctant to give them to you just mention that you have a legal right under the Data Protection Act and that you're sure no-one at the surgery wants to break the law. If they want to charge more than a small amount for paper and ink, ask to see the computer screen and take a photo on your phone or write them down yourself, remember to make a note of the ranges as well.
Just speak to reception and say something along the lines of "I would like a print out of my test results please from ...... " Hopefully they will agree without any problems, you know what to say if they're difficult! You can say you will pop into the surgery in 2 days time to pick them up.
Make a new post when you have them and members can comment. Link back to this post or repeat the information.
PS - you don't have to give a reason for wanting them, if pushed just say "for my own records" and leave it at that.
Essential to know if you have high thyroid antibodies. Ideally testing both TPO and TG antibodies. However NHS only test TG antibodies if TPO antibodies are also high
Low vitamin levels are extremely common too so definitely get vitamin D, folate, ferritin and B12 tested
You can easily have low TSH, high FT4 and yet still have very low FT3. fT3 is the ONLY active hormone so it's very important to test. Again NHS usually refuse unless TSH is out of range
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