I went to see Dr Tof--c and he asked me about my blood tests and symptoms. He started down the track of 'it could be something else because your bloods are in the normal range'. I then spoke to him about Dr Toft's reports about increasing levo dosage or dual medicating with liothyronine. our local ccg won't allow the precription of liothyronine so he's going to increase the dosage and see how I get on and if I am still exhibiting symptoms he will the discuss further private referrals for me including to a colleague who has Chronic Fatigue clinics. He wants to focus on the thyroid and medication first. Up to 75mcg. See how I go and get some more bloods done in 8 weeks.
I think I would have walked away empty handed if I hadn't been on her and done my research. Thank you everyone x
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Eimear78
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Some already acknowledge if NHS endo says you have clinical need, eg Oxfordshire
Legally they all should. As confirmed by senior management at NHS England meeting in London in October
Swale CCG in Kent have apparently acknowledged DIO2 gene and are offering test on NHS, also acknowledging if gut biome affected and gluten then patients also need T3
What have you done about improving your nutrient levels that you posted a couple of months ago Folate, Vit D and Ferritin were all low and needed supplementing healthunlocked.com/thyroidu...
I didn't see your post at the time or I would have responded. You mentioned my name in your message but you didn't tag me. To tag someone you need to put @ immediately in front of their username, leaving no space, then click on their user name from the list that pops up and it will turn blue like this Eimear78
Hi SeasideSusie I have been taking the Vitamin D and Magnesium Malate for a month now. I am finding it difficult to have liver every week but eating plenty of veg. He didn't seem worried about any of those and said he will test me for Vit D at my next appointment. He also didn't think my active B12 was a worry.
Out of interest is there anything I should look out for when I increase the medication? Just in cases it goes the other way.
Your tag didn't work it's SeasideSusie (no space) with @ directly in front then look below the message box you are writing in for the list of members names that pop up and choose the correct one from that, click on it and it turns the name you've typed blue.
Your GP wont be worried about any of those levels because they're not trained in nutrition and they are in range, albeit low.
Your Vit D was 37.8nmol/L and clearly says Insufficient 25-49 so your GP should have at least agreed it wasn't good enough. How much D3 are you taking? Are you taking K2-MK7 as well as the magnesium, both are cofactors.
What about your Ferritin at 54.7? If you can't eat enough liver you could take some form of iron tablet and take it with 1000mg Vit C to aid absorption.
Are you taking a B Complex for your folate level of 8.8.22 (2.91-50)? Folate should be half way through it's range.
I can't comment on active B12, I only really know about serum B12.
I'm assuming your increase in Levo is 25mcg? There is plenty of room to increase going on the results you posted 2 months ago so I don't think you need anticipate any problems unless you are super sensitive.
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Should I do private thyroid test before appointment with Endocrinologist please?
Thank you to everyone's advice and help, a great forum!!
Please can you guys look at this for my mom? Thank you!
So, thank you for suggesting I do more blood tests and here are my Blue Horizons test results
