Fibromyalgia research funding petition

[Clutter]

Andover Fibromyalgia and ME Community Group have asked us to sign and share the petition below:

Petition to Jeremy Hunt; Provide funding for research into Fibromyalgia

In the UK they are currently approximately 3 million people living with fibromyalgia in the UK alone, between 2.9 and 4.7% of the population worldwide.

Fibromyalgia is an invisible illness characterised by chronic widespread pain and debilitating fatigue among other symptoms including unrefreshing sleep, joint stiffness, dysautonomia, cognitive dysfunction (often referred to as Fibrofog), multichemical sensitivity, hyperalgesia, allodynia and bowel & bladder abnormalities. The exact cause of fibromyalgia is unknown; however, it is thought that it’s onset may be due to a trauma and this could be a viral episode, a bereavement, whiplash or a stressful experience. People living with fibromyalgia experience a painful response to pressure and can experience a heightened response to both painful and non-painful stimuli.

Diagnosing fibromyalgia can be a lengthy process as there is currently no proven laboratory test and due to many other conditions displaying strikingly similar symptoms. Patients often live with depression either as a precursor to Fibromyalgia or most often due to living with this debilitating often disabling condition. Recent studies consider Fibromyalgia to be most likely a Central Nervous System disorder relating to central pain sensitisation among other hypotheses.

We need allocated funding for research into Fibromyalgia which will increase knowledge and understanding within healthcare and help individuals living with this condition receive appropriate healthcare, timely diagnosis and ongoing support for the condition. Therefore, we are calling on Jeremy Hunt & the UK Government to discuss the need to provide funding in order to conduct further research.

Here's the link to sign;

change.org/p/jeremy-hunt-pr...

Please share this petition using the Hashtag: #fibroresearch

Many Thanks

[lola1956]

Signing this now ..I have this condition and more research is definitely needed , thanks for posting .

[marmaris in reply to lola1956]

Signed especially as I suffer from this.x

[Ebs73]

Signed. I was told some years ago that I had this but the gp gave me no advice, information or a plan of action! I literally had to go home and Google search it! Luckily I love researching natural treatments! I've been using a strict elimination diet up till a year ago. (See recent posts!) An array of supplements and L.D.N (low dose naltrexone) which I get on private prescription. I also take T3 but originally was on NDT after hearing an interview with Dr Lowe (& lots of other research) about how a certain amount of his Fibro patients were actually untreated or badly treated people with Hypothyroidism! Well whatever is going on it would be nice if there was some decent dedicated research going on!

[Clutter in reply to Ebs73]

Ebs73,

Hopefully, any research will also investigate whether low thyroid levels are one of the causes.

[Margas in reply to Ebs73]

Hi EBS! Would you please tell me where I can find information about LDN? What do you take it for? Thank you

[Ebs73 in reply to Margas]

Hi there, I started using it when I had adrenal fatigue, hypothyroid symptoms, possible autoimmune problems, fibro and chronic fatigue. I was in such a bad way that I was willing to try anything! There is loads of info online. I simply filled out a form online and then I was contacted by a private doctor for a phone consultation when he was confident LDN would help he said I could have a private prescription. Hope this link helps.

prescribe4me.co.uk/lowdosen...

[Margas in reply to Ebs73]

Many thanks, EBS for the link. X

[Dee8686 in reply to Ebs73]

Hi has thy LDN improved things or you? X

[Ebs73 in reply to Dee8686]

Hi there, in all honesty I couldn't say how much it has helped. Mainly because I devised a protocol which included strict diet, herbs & supplements, cbd oil and LDN. I think the stand out thing with LDN was an improvement in sleep quality but who knows, unless I tested everything separately there's really no way to know for sure!

[stiltzski in reply to Ebs73]

I’m in a similar situation. Signed.