Help

[jan1780]

I feel so overwhelmed with everything I read, I feel like I do not know which way to turn. I feel so isolated, desperate and lonely.

I have no idea which road to take, although I would prefer to try a natural remedy.

I have nothing left and feel like my life is over due to the horrendous fatigue.

I am taking Levo but only because I've felt backed in to a corner, do not make me feel any better.

Am trying to do lots of research to medicate myself but struggling so much as everything seems daunting.

Everyday is a terrible struggle and my life is falling apart, my family do not seem to hear me.

Can anyone please suggest anything other than Levo,

Sorry to be so pathetic but my body feels as though it is shutting down and I haven't anywhere to turn.

Thankyou for listening to me

Jan

[Peanut31]

Hi Jan178”

First of all you are not alone in feeling like this, people on this forum will relate to how you are feeling, including myself.

There will be far more experienced people on this forum than me to advise, and with their help you will start to feel better, I promise.

Are you able to provide any further information?.

Have you had a full Thyroid test, etc.

Please take care, best wishes

Peanut31.

[jan1780 in reply to Peanut31]

Thankyou peanut

I almost felt embarrassed posting my plea but I feel so desperate.

I have paid for a full thyroid test and maybe should share, but at the minute life seems hopeless and I haven't anything left.

I was diagnosed about two year ago but things haven't progressed much in this time, leaving me rock bottom

I appreciate your kindness

[Peanut31 in reply to jan1780]

Don’t be embarrassed honestly people can and will help, but, in order for the experienced

[Peanut31 in reply to Peanut31]

Whoops pressed send before finishing,

as I was saying in order to help you, you need to post your thyroid results including the ranges.

I see in a previous posts others requested this, but you said the doctor told you the results on the phone.

Can you pay for private blood test, this is what I did and the results are sent to you direct.

You can then publish the result on here (with ranges) and with advice from this forum, go back to your doctors.

Take care.

[jan1780 in reply to Peanut31]

I have paid for private tests and will post the results tomorrow as I am up at 5am in the morning.

Goodnight

[Jazzw]

OK. First of all, it’s likely there isn’t a natural remedy that’ll fix this. But there is more to the hypothyroid life than levothyroxine.

2 months ago you posted these results healthunlocked.com/thyroidu...

When you are taking levo, what dose are you prescribed? My first thought is that it’s likely you’re being given far too low a dose to make a difference - but let’s see...

[jan1780]

I paid for private bloods after that post, which cost me more than I anticipated, but felt it had to be done.

I was on 50 of Levo but didn't feel that much better. I didn't feel as though it suited me and felt that I would prefer to put something more natural into my body than a synthetic form.

Hope this makes sense

[BadHare]

You poor lamb!

Check some of the posts regarding medication & optimal nutrient intake. It doesn't take a lot to stop our hormones & meds working effectively. Perhaps have a look for anything that might be clashing & stopping them from working. I scuppered getting better by eating soy & taking supplements at the same time as my thyroid hormones. Some folks seem to do better with a change of diet, & cutting out gluten, or adding T3 &/or NDT. There's lots of fabulous people here that will help you. Do you have any blood test results that people could look at as a guide?

[jan1780]

I too have been eating soy, cut that out now and starting to eat gluten free. However I am taking supplements still, maybe I should cut these out. I have been taking them for a few years and feel they may help with another chronic illness that I have. However if they are interfering with my thyroid then maybe I should give them up. They are supplements to support my immune system and my heamatologist is aware and happy for me to carry on although she doesn't know anything about the thyroid.

I will be posting my blood results tonight.

I am on 25 Levo again after coming off them due to muscular pain. This has now developed again so I am eager to try something more natural to the body.

Thankyou for your reply, it is appreciated

Jan

[marigold22]

Please don't apologise. I remember that feeling of total hopelessness. I used to pray that my family would see how ill I was but they didn't. I even took to lying on the bathroom floor crying (& my husband simply stepped over me). You are ill, possibly very ill. 35 years later and with the help of this fab forum. I am fully recovered. We do need to see your latest blood results to be able to give you an informed view of your health. You aren't alone when on here, there is an army of mainly women (it's a women's illness) with a fountain of knowledge. In fact far more knowledge certainly than any GP, and more than most endocrinologists, even Professors of Endocrinology. One Professor of Endocrinology nearly killed me in 2006. Big hugs

[milupa in reply to marigold22]

Reading your story, marigold, just reminded me of the darkest times of being so ill... lying on the bathroom floor crying... at times even too exhausted to cry... the cruelty of husband and family, again too exhausted to explain... jan1780: too many of us suffered quietly, hiding just how bad we feel. Please don’t hesitate to come here and vent or ask questions! Everyone here is wonderfully supportive and non-judgmental. You will be given a lot of good advice.

[jan1780 in reply to milupa]

I have spent so much time alone because I was made to feel like I was imagining it and it took so much for me to reach out. So glad I did

Xx

[milupa in reply to jan1780]

Jan1780 - I actually stopped trusting my fellow human beings after I received abuse instead of empathy from the people I had helped and supported despite being unwell. It is so easily said but hard to do: Learning to put ourselves first, to put all we learn about recovering our health into action takes a lot of energy. Whilst I hide how I feel most of the time reading other people’s stories and the exchange of knowledge here has helped me more than any of them will ever know.

I was actually a lurker for years before I dared post a question!

I hope you will recover a little bit every day!

[jan1780 in reply to milupa]

Sorry to hear of your mistrust in your fellow human beings, I fully get that. Even my own mother has said some unforgivable things.

I receive more empathy from my American bulldog than I have any other human ( apart from here of course)

I am happy that you have found comfort from this forum, so am I.

I appreciate your reply and feel honoured that you shared your experience to.

Thankyou

Xx

[milupa in reply to jan1780]

I just looked up American Bulldogs - gorgeous!

I have a Boston Terrier and although he is a rather difficult dog I learn something new every day with him and laugh so much at his antics. When he curls up on my lap the world is alright!

Hopefully you will get some answers when you post your test results!

Thank you for your kind words!

[jan1780 in reply to milupa]

Boston terriers are amazing. We have met a few on our doggie walks and you can plainly see they have a huge amount of character. Must be lovely to have your dog curled up in your lap, don't think I'll try that one with mine lol

I have posted my test results and have had some real helpful advice.

Back to the docs again, he will probably be fed up of me before long but hey ho.

Thanks again

My dog is diesel what's your dog called.

Have a nice evening

Jan

Xx

[milupa in reply to jan1780]

Hi again - I took atime off to prepare my questions before an appointment with my fab functional doctor yesterday afternoon, luckily she supports all my self treatment decisions!

I had a big laugh imagining your dog demanding nap-space on your lap!!

Mine is called Gilbert, well actually Agent Gilbert Cohen (Agent from the breeder plus I got him when Leonard Cohen passed...)

You had fab advice about your blood test! I'm glad your inflammation marker is low. Maybe you could get all four iron tests?

Hope the visit to your doc was successful!

[jan1780 in reply to milupa]

It makes all the difference when you find a doctor who actually listens and works with you. Took me a while to find the doctor I am with now but he lets me have my say even if he doesn't think it's right. I know how difficult it can be when the doctor will not listen.

We are very lucky.

I love that name, sounds very posh lol.

Yes I agree, fab advice which was very much appreciated.

Didn't realise there were four iron tests, I was at the back of the queue when the brains were given out lol. But I am learning.

Take care

Xx

[Kcdb in reply to jan1780]

You are not imagining it. You are not alone . Sending Hug .

[jan1780 in reply to Kcdb]

Thankyou for your kind words.

Xx

[jan1780 in reply to marigold22]

Thankyou so much

I feel like there is a light in the distance

Ditto.......my husband stepped over me to, everyone has made me feel like I was losing the plot.

It is so refreshing to share and have understanding

Thankful to everyone

I'll put my blood results on later, just got in from work and the dog is demanding his walk lol

Xx

[liz1952]

Hey Jan1780...don't feel embarrassed, bet there's not one person on this forum who hasn't felt exactly like that on occasions, this is why this site is so popular - we empathise as well as sympathise. You have got somewhere to turn - it's us lot xxx

[jan1780 in reply to liz1952]

I am so glad I reached out, so refreshing to have empathy and support.

Bless you all

Xx

[marigold22]

Muscular pain can be from low magnesium. You do need to see your private blood tests to see where your body is at. I hope you have included vitamin D, vitamin B12, folate & ferritin, also the two thyroid antibodies. I personally have stopped eating ALL forms of grain. I had it explained to me that grains are a form of grass; that humans can't digest grass easily, therefore our body is working harder to digest it. Cows eat grass but they have three stomachs to digest it!

[jan1780 in reply to marigold22]

I paid private for my bloods and yes they include all what you say. I am going to post them later as the dog is hounding me for a walk lol

Thanks for the advice on grains, I will take that on board.

Thankyou for taking time

Much appreciated

Xx