I am about to ask my GP for a referral to see an Endocrinologist privately as i have lost all faith and confidence in my GP and how my under active thyroid is being dealt with by the practice.
Is there anybody out there that has had a positive experience with an Endocrinologist that operates in or near the Birmingham, West Midlands area that is Thyroid friendly and that will listen?
Please direct message me with info if you can help. Any help will be very much appreciated.
Thank you.
Hi, my answer is very sadly No. I'm near Birmingham and have been sent to the Queen Elizabeth Hospital which is a very large teaching (& I think research!!) hospital. Every single endo I have seen there has been awful. I did see one excellent Prof of Endo back in 2014 but sadly he's left. I think there's a very good endo in Coventry but can't remember his name.
Thank you for responding. It’s very much appreciated.
It’s just so frustrating isn’t it.
I felt like I’m fighting a battle on my own until I discovered this site/forum.
Good luck and best wishes, Colin
Hi again, I've just read your previous post. I've been there - totally ignorant GPs at various surgeries as I have moved around England. I was never referred to an endo, having been diagnosed Hypothyroid in 1981. I was desperate and in the end had no option but to research and learn all thyroid facts myself. One Professor of Endocrinology at the QE Birmingham nearly killed me (in 2006). In your previous post Seaside Susie gave you vital information.
If you have the list of recommended endocrinologists from HU, you could try one of them, either on the NHS or privately. However, no endo has ever checked my vitamin and mineral levels, which are vital in the recovery process.
So, you need to get a private blood test from either Medichecks or Blue Horizon
bluehorizonmedicals.co.uk/t...
You need that private blood test to include TSH, FT4, FT3, vitamin B12, vitamin D, folate, ferritin, and two thyroid antibodies.
Then post the results for interpretation. The vitamins B12 & D and the two thyroid antibodies are probably tests your GP has not done? They are all vital in the diagnosis of what is exactly going on.
You are most definitely under medicated with the blood results you have posted.
You may have an even more complicated version of hypothyroid, called Hashimoto's Thyroiditis. The two thyroid antibody blood tests show if you have this or not.
Yet another point - you are on 100mg of levo (T4) and feel less well the higher the dose you take. That happened to me. You may have yet another complication (as I do) where your body is unable to convert the T4 you are taking into the usable thyroid hormone T3. This is due to a genetic fault with your thyroid, called the DIO2 gene. To discover, you need to pay £160 to Regenerus Labs regeneruslabs.com/page/home...
They have a variety of thyroid genetic tests so if you go ahead, you need to email or phone them to ask which is the Thyroid DIO2 gene test. They are friendly & helpful. If this gene test returns as positive it means your body cannot convert all the T4 tablets you are taking and you will need to change to T3 tablets.
You are being bombarded with advice! It is no doubt overwhelming. There is an army of mainly women on this forum who have recovered their health; me being one of them. I wish this forum had been around when I was suicidal from my never ending symptoms of Hashimotos Thyroiditis and my body's inability to convert my prescribed T4 tablets into T3.
Please do send me a Private Message if you need any more explanation.
Professor MW in Coventry wrote an interesting letter in response to that study involving older people, TSH, and levo. - there's mention of him here and in the comments: healthunlocked.com/thyroidu...
I’ve PM’d you
There was a brilliant doctor in Birmingham and unfortunately he died of a stroke. However the link below will give you some details about his staff who were grief stricken by his unexpected death.
healthunlocked.com/thyroidu....
They have been working steadfastly since collating all of the research papers.
The Vaccine Research Trust is in Birmingham and Dr Skinner consulted there so I don't know if they will be aware of a good doctor who worked in a similar way to Dr Skinner. This is the address and his right-hand woman is Dr Afshan Ahmad who still works on a research basis. Address below:
Vaccine Research Trust
22 Alcester Road
Moseley
Birmingham
B13 8BE
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