T3 recommendations : Hi all, am very new to this... - Thyroid UK

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T3 recommendations

BrokenPatience profile image
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Hi all, am very new to this after being hospitalised in July with myxoedema. Have started to do a lot of reading and wondered if any of you could inbox me on where I could buy some T3 online please. I have looked but it seems like a minefield! Your recommendations would be most gratefully received! Thanks in advance.

#t3 #hypothyroid #hashimotos

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BrokenPatience
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SeasideSusie profile image
SeasideSusieRemembering

BrokenPatience

If you can post your latest thyroid test resuts, to include TSH, FT4 and FT3 (with reference rangess), and your thyroid journey and current medication, members are more likely to respond with source of supply.

It's very important to only take T3 if it's needed, and seeing your results will enable members to suggest how you should add T3 and if Levo needs to be reduced.

BrokenPatience profile image
BrokenPatience

Hi SeasideSusie

SeasideSusie profile image
SeasideSusieRemembering in reply to BrokenPatience

Hello :)

BrokenPatience profile image
BrokenPatience

Sorry, very VERY new to this so having some difficulties!

TSH 11mU/L ((0.27 - 4.5mU/L)

FT4 15.3 pmol/L (11-23pmol/L)

FT3 3.63pmol/L (3.10 - 6.80)

I have just had a blood test with Medichecks yesterday for a full thyroid screening as am still symptomatic and after 4 months off, really need to get back to work!

SeasideSusie profile image
SeasideSusieRemembering in reply to BrokenPatience

BrokenPatience

No problems :)

There's no way, at the moment, that you can know if you need T3. Taking it if you don't need it is asking for problems.

Can I suggest that when you get your Medichecks results back, you make a new post on the forum with full details (including ranges) then members can comment. Either type the results out or post a very clear picture large enough for people to read easily.

First off, you need Levo, if you are already on it then you need an increase. Your TSH needs to come down to the lower end of the range, then we can see where your FT4 and FT3 are and whether or not you are converting T4 to T3. If your conversion is poor, then consider T3, but only if vitamins and minerals are optimal (they need to be optimal for thyroid hormone to work).

You'll get there but it takes time :)

BrokenPatience profile image
BrokenPatience

Have been having issues since March 2012,had lots of tests done due to fatigue, muscular pains, brain fog, referred to rheumatologist who concluded in May 2014 I had Chronic Fatigue Syndrome. Since then, any issue has been fobbed off because of the CFS. Pleaded with my GP back end of last year to send me to an endo due to changes in menstruation, I saw one in January this year, he did nothing other than told me I needed to find some coping mechanisms and get my depression sorted (I'm not what I would consider depressed, just frustrated and fed up with symptoms!). Felt increasingly unwell as the year went on, backwards and forwards to Dr's as blood pressure was continuously raised (150/100 on average but naturally fluctuating), continously told I was to monitor. Became increasingly oedamatous, fatigued, cognitively impaired, in the end went to A&E. Told in the hospital I was bradycardic with an incomplete right branch bundle block, dehydrated and kidney function down to 50%, so continously given IV fluids and was told there was nothing wrong with my blood pressure. I was actually even told it was my own fault and I was choosing to dehydrate myself!?! Kidney function decreased whilst I was in hospital but eventually a 'nice' consultant returned from holiday and started questioning what was going on. Discharged and 2 weeks later was found to have TSH 85 FT4 1, and almost 400 Thyroid Peroxidase antibody count. Put on 75mcg levothyroxine which was increased to 100mcg after a month and remains at that. GP has been awful and not understanding at all, almost like I'm an inconvenience. Renal consultant explained I now have Chronic Kidney Disease stage 3 but he does expect this to improve as my thyroid function improves, it just hasn't improved yet. Due to have my next texts next week to see how I'm getting on but the whole episode has left my body in a right state and I've gained 2 stone in weight, despite previously being reasonably slim, and strong. Am looking forward one day to feeling normal!

Clutter profile image
Clutter

BrokenPatience,

How long have you been taking 100mcg? If TSH is 11 6 weeks after raising to 100mcg you need a dose increase. Dose adjustments are usually in 25mcg increments every 6-8 weeks. You may need further increases until TSH is optimal.

The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.27 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.roberts@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

Thyroid peroxidase antibodies 400 are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

Another member has seen considerable improvement in renal function since her thyroid levels have been good. You can read her posts in healthunlocked.com/user/dre...

BrokenPatience profile image
BrokenPatience

Hi Clutter

Started taking 100mcg on 6th Oct when TSH was 23.5, it was 11 by 5th Oct so it is definitely coming down, I just feel like I've hit a plateau and to be perfectly honest, thought I would be feeling better than I do by now!

Thank you both for info and advice, guess I'm just going to have to be a bit more patient!

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