What to say to the Doctor: Following advice on... - Thyroid UK

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What to say to the Doctor

Margaretindevon profile image
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Following advice on here I have an appointment with my Doctor on Thursday to discuss my health. Consensus of opinion on here was that I needed an increase in my Levothyroxine, that my Ferritin was low, Vit D was low.

I have a horrid feeling this is going to be a battle so could anyone give me pointers as to what to say please?

I posted my private test results previously but will do it again so that you know what I am talking about.

HAEMATOLOGY

Vitamin B12 * 832 pg/ml 197 - 771

Note amended reference range due to change to

Gen II assay.

Folate (serum) >20.0 ug/L > 2.9

Note new reference range effective 03/04/2017.

If no change in dietary habits, a normal serum

folate makes folate deficiency unlikely.

BIOCHEMISTRY

FERRITIN 26 ug/L 13 - 150

Optimum Ferritin level for females : >27 ug/L

C Reactive protein 3.3 mg/L <5.0

ENDOCRINOLOGY

TOTAL THYROXINE(T4) 99 nmol/L 59 - 154

THYROID STIMULATING HORMONE * 4.85 mIU/L 0.27 - 4.2

FREE THYROXINE 15.2 pmol/l 12.0 - 22.0

FREE T3 3.5 pmol/L 3.1 - 6.8

25 OH Vitamin D 62 nmol/L 50 - 200

Interpretation of results:

Deficient <25 nmol/L

Insufficient 25 - 49 nmol/L

Normal Range 50 - 200 nmol/L

Consider reducing dose >200 nmol/L

IMMUNOLOGY

THYROID ANTIBODIES .

Thyroglobulin Antibody * >4000.0 IU/mL 0-115

Method used for Anti-Tg: Roche Modular

Thyroid Peroxidase Antibodies 19.5 IU/mL 0 - 34

Method used for Anti-TPO: Roche Modular

Margaret

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SlowDragon profile image
SlowDragonAdministrator

How much Levo are you taking and when was it last increased?

Ask for 25mcg dose increase as "trial" if they start to protest. Blood tests 6-8 weeks after to retest.

Print out copy of this Pulse article

You can obtain a copy of the article by emailing louise.roberts@thyroiduk.org print it and highlight question 6 to show your doctor.

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

Vitamin D - you can self supplement. GP is only able to prescribe 800iu anyway and it is unlikely to be enough.

Ferritin, yes GP should treat you. You may need iron panel investigation. SeasideSusie will advise

Clutter profile image
Clutter

Margaretindevon,

The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.3 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.roberts@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

Thyroglobulin antibodies are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

Ferritin is optimal halfway through range but your GP may be satisfied that your ferritin is within range and decline to prescribe. If your GP won't prescribe iron you can buy Ferrous Fumarate 210mg and take 1 x daily with 1,000mcg vitamin C to aid absorption and minimise constipation. Take iron 4 hours away from Levothyroxine.

Vitamin D 62 is sub optimal and 800iu is insufficient to raise it. Replete is 75 - 200 and most people are fine around 100. I would supplement 5,000iu D3 daily for 8 weeks and then reduce to 5,000iu alternate days and retest in April. Vit D should also be taken 4 hours away from Levothyroxine.

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