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[SarahFerguson]

Hi all, I am a PA sufferer. I have just looked at my medical records as I’m not feeling great at the moment and found this: TSH in Dec 11 was 2.95mu/l normal ref range 0.35-5mu/l in July 13 4.3mu/l and in Feb 15 4.mu/l , my question is should I be worried about Thyroid? I was dignosed with Pernicious Anaemia in July 13 and also have Vitiligo.

Thanks.

[SeasideSusie Remembering]

Sarah - was it only TSH tested? No FT4? Your last TSH shows that your thyroid was struggling and in another country you would have been given a diagnosis of hypothyroidism as soon as it hit 3.

I would ask our GP to do a new full thyroid panel to include TSH, FT4, FT3 and thyroid antibodies. If he wont do them or can't get them all done then we can suggest private labs who do them for a reasonable price, either with a fingerpick test or venous blood draw (which would be at extra cost).

[SarahFerguson in reply to SeasideSusie]

Hi Susie, thank you very much for replying. Yes, it was just TSH tested. I’ve just got my head around dealing with PA. I’m worried now it’s gonna take GP years to sort this out. I have a GP surgery that doesn’t look past a within ref range result” whether it ‘s just under range. I would probably go for private test now, but will GP take a result done privately needing treatment.

[SeasideSusie Remembering in reply to SarahFerguson]

Sarah

Some GPs will accept private test results, some wont but it might at least prompt them to do their own.

If you want a full thyroid panel including antibodies plus vitamins and minerals (always useful to have a full picture) then look at

medichecks.com/thyroid-func... and

bluehorizonmedicals.co.uk/t...

If you only want the basic TSH/FT4 and FT3 then

medichecks.com/thyroid-func...

bluehorizonmedicals.co.uk/t...

[SarahFerguson in reply to SeasideSusie]

Thanks Susie, I can’t get an appt with GP for at least 3 weeks and that’s if I’m lucky! Probably order private test.

[shaws Administrator in reply to SarahFerguson]

Have the test on an empty stomach (you can drink water) and if you were taking thyroid hormones, you'd allow a gap of 24 hours between last dose and test and take afterwards.

Always get a print-out of the results with the ranges and post if you have a query.

GP should test B12, Vit D, iron, ferritin and folate too.

[Marz]

healthunlocked.com/pasoc/po...

Hi Sarah - glad you are pondering the thyroid. We had a little discussion some seven months ago in the above link. Lets hope you soon find some answers.

Go to the main website of Thyroid UK and click onto About Testing - where you will find the information about Medichecks and Blue Horizon and the Private Testing.

thyroiduk.org

[SarahFerguson in reply to Marz]

Thanks Marz, the only reason I checked my results from years ago was something that was said about Thyroid recently and it prompted me to check my results and of course that I’m not feeling great even with 8 weekly B12 Jabs. I SI sometimes.

[Marz in reply to SarahFerguson]

It is possible you have Hashimotos which is also auto - immune - a condition that likes to hunt in packs 😊

Am sure the helpful folk here will soon have you sorted - hope so. I remember that awful fatigue ....

[SarahFerguson in reply to Marz]

I just put it down to B12 but as I’m on treatment for that I’m beginning to question it. I thought maybe peri-menapausal as well but when I saw TSH results on my records I think I’m on the right track. Yes, I realise that if you have one auto-immune it’s highly likely there will be othes: to date its vitiligo, 2003, PA 2013 vit d def in 2016 and now possible Thyroid😭 other than that I’m healthy lol!

[Marz in reply to SarahFerguson]

Know the feeling 😊 I have Crohns - B12 D - Hashimotos - and too many miles on the clock at 71. After a lifetime of poorliness I was diagnosed with Hashimotos in 2005. The light went on and my health improved. I was also able to ignore the Fibromyalgia diagnosis fromm 2000.

Hubby and I tested insufficient with VitD some 10 years ago after having lived in Crete for 4 years !!

Low D goes hand in hand with auto immune issues. I too had vitiligo before Hashi's diagnosis.

You can click on my name above and have a quick read of my profile.

Wishing you wellness ....

PS. I agree - I think you are on the right track. What are you going to do about testing ?

[SarahFerguson in reply to Marz]

I’m not waiting for GP only to be told I’m in ref range... (from experience GP’s are useless). I’ve got a 19 tear old with a family history of Auto immune def his B12 was 142 already vit d def lots of symptoms and still GP won’t treat with B12 Jabs. I’m at wits end with it all. Got no Energy to fight anymore.