Help again please: Had some good advice of this... - Thyroid UK

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Help again please

Trophygirl profile image
9 Replies

Had some good advice of this forum.but I'm still lost.had bloods done on 9 Oct rang endo told me to stop carbimazole as its showing low t3 said I've gone from hyper to hypo got a letter from him yesterdayp to have my bloods repeated in3weeks no print out sent. Mean while saw a locum Dr on Monday told her that I feel dreadful y unwell very weak etc she sent me for some more bloods to check. all vitamin levels .fortunately I see y own Dr tomorrow. Is there anything more I should be asking her . iam so weak I feel as if the plugs been pulled and my life's blood is draining away..its took all my strength to compose this Thankyou x

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Trophygirl
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9 Replies
SlowDragon profile image
SlowDragonAdministrator

Make sure to get actual results and ranges tomorrow. Ask for thyroid antibodies, TSH, FT4 and FT3 to be tested, plus vitamin D, folate, ferritin and B12

Ask if TSI antibodies have been tested to confirm Graves' disease

thyroiduk.org.uk/tuk/about_...

Rmichelle profile image
Rmichelle

Poor you, ive started carbi titration, reducing the dose, and dreading it really. Should you be starting hypo meds then? Good luck.x

Trophygirl profile image
Trophygirl in reply toRmichelle

Thanks rmichelle don't no what I should be taking .I hope you go on OK too x

Rmichelle profile image
Rmichelle

Its no win situation with docs they are not intetested in our well being just their bloods numbers on levels. My endo wouldnt do tsi test for me but i do have hashimotos. Let us know how you get on.xx

Rmichelle profile image
Rmichelle

Hiya trophygirl if its any consolation i to am resting in bed as started titration and feeling rubbish, palps breathless, weak and exhausted with muscle aches. We can be miserable together. Ha. I know its a pain but everyone will say you need them printouts for your own records and for on this site because the people on here will give you so much help. You need to have optinum levels thats right for you not just clinically in range. I think they dont want you to have them copies of bloods but you are entitled to them under the data protection act. I mean what is their problem!! Have you got appointment yet for endo? I waited 2half months for mine and they cancelled once. 😠hope you get a good endo. Mine useless and arrogant. Poor you with a chest infection aswell.im only 47 but feel like 87. Ha.

Trophygirl profile image
Trophygirl in reply toRmichelle

Hi againRmichelle sorry your unwell too.your only young to be suffering like this .I'm nearly 20yrs older and I've had an hectic life I call this pay back time for working hard and playing hard icannot begin to imagine at your age what it would have been like to be so I'll. See endo in DEC take care well rest together x

Rmichelle profile image
Rmichelle in reply toTrophygirl

You are still a spring chicken trophygirl. Take care and plenty of rest especially as you have chest infection. Yes i see endo again in december. Keep in touch.xxx

Trophygirl profile image
Trophygirl in reply toRmichelle

Hi R Michelle just to let u no finished antibiotics .feeling a tad better than this time last week still not great but there you go.just same as everyone else on this forum.I hope ur doing OK. and feeling a little better take care and keep fighting luv Trophy girl x

Rmichelle profile image
Rmichelle

Hi trophygirl glad 2 hearthat you are on the mend now but yes know how you feel with rhyroid, i gave my better days and bad days, been to birmingham nec supreme cat show today and shopping in birmingham so i have well over done it today and will most likley suffer tomorrow. I am exhausted😴, yes keep fighting and dont let it grind us down.xxxxxtaje care and keep in touch.😊

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