T3

[Jax90]

Hi new member here, could I please receive advice on where to acquire T3 since my endo stopped it in September 2017. Diagnosed hypothyroid 2012. Thanks

[Clutter]

Welcome to the forum, Jax90.

Did your endo say why T3 was being withdrawn and was Levothyroxine dose increased to compensate?

[Jax90 in reply to Clutter]

T3 was withdrawn because the endo said improvement of symptoms wasn't clinical evidence and levothyroxine was kept the same at 150mcg. I have symptoms of tiredness, pins and needles, puffy eyes, throats feeling tight, goitre, constipation, weight gain, tiredness, bone/joint pain. Thanks

[Clutter in reply to Jax90]

Jax90,

What a pillock! Worse still not to increase Levothyroxine dose to compensate.

Were you feeling well on the T4+T3 combination? If you had bone/joint pain then you should ask your GP to check ferritin, vitamin D, B12 and folate. Deficiencies are common in hypothyroid patients and ferritin and vitD deficiencies in particular can cause bone/joint pain.

Please complete the NHS England Survey re withdrawing Liothyronine prescriptions. engage.england.nhs.uk/consu...

Please also sign the petition requesting better thyroid diagnosis, testing and treatment. change.org/p/itt-campaign-g...

If members can recommend T3 sources they will send you a private message as sources may not be posted on the forum. To read a private message: support.healthunlocked.com/...

To send Jax90 a private message: support.healthunlocked.com/...

[Jax90 in reply to Clutter]

Yes I felt better on the combi therapy

[SlowDragon Administrator in reply to Jax90]

Because adding T3 was what you need

2nd endo is a a....e

We have had whole bunch of people turn up having had same thing

One endo starts them on T3, they finally begin to get better

Then some idiot endo says symptoms improving is nothing to dobwith adding T3 and takes it away

Low and behold symptoms return, often worse than before as the sudden removal crashes gut function and vitamins nose dive

It's completely unacceptable

[SeasideSusie Remembering in reply to Jax90]

the endo said improvement of symptoms wasn't clinical evidence

OMG, that just about takes the biscuit! What evidence do they need then FGS!

[ITYFIALMCTT in reply to SeasideSusie]

Plainly, it's evidence of spontaneous remission of symptoms that happened in the same timescale as the use of the T3 and it would be no more than an unfortunate coincidence if those symptoms spontaneously recurred with the cessation of the T3.

And this just shows how unreliable symptoms are for measuring improvement in a chronic condition. Even if those improved symptoms are reflected in contemporaneous blood work and would deceive the unwary or the lay person.

I think that's how the clinical summary would read, SeasideSusie

[SlowDragon Administrator]

Also email Louise at Thyroid Uk for list of recommended thyroid specialists, including T3 friendly

[e-mail]

Was this different endo than the one that initially started you with T3?

Highly likely with T3 stopped that your vitamin levels have nose dived

Do you have results for vitamin D, folate, ferritin and B12. Ideally from when on T3 and now

Do you have Hashimoto's (high antibodies)

If so changing to a strictly gluten free diet may help reduce symptoms.

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw or

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

[Jax90 in reply to SlowDragon]

Different endo and he said he did not support T3 or believe it's effective in treating hypothyroid, not sure if I have high antibodies but will post what I have. Thanks

[Sabine_es]

I once heard from endo - when I said to him that since T3 addition to my T4, my condition had improved a LOT - he answered: "placebo effect can do much for some patients"... and told me to stop all my T3 cold turkey

[SeasideSusie Remembering in reply to Sabine_es]

I self source/self medicate with some T3 added to my prescribed Levo. Your experience is exactly why I'm not telling my GP. But heaven help me if I ever need to go into hospital for anything!

[Jax90 in reply to Sabine_es]

Yes same here

[Sabine_es]

This is the case I have in Spain, but even here I found an endo that is Ok. with T3, just took me quite long to find him. Easiest it is in Germany, as I lived there, my previous GP sends me T3 when I need it. For me it is simply cruel to tell a patient to stop a medication that makes his life so much better quality. And my hormones are not even half range! But those endos do not care how we feel...