Mamabear

[Harrydog49]

Hi can anyone help me with this problem,I am 66, and I have been on NDT, for 2years,but I have this awful pain in my shoulder at the back,my doctor said it is a muscle problem,it's making me slow down,it's difficult to walk,I get out of breath.its like someone is putting a knife into me.even if I sneeze,it's really painful.and I can't move I get palpations.any advise will be very grateful.many thanks in advance 😞

[shaws Administrator]

You need a new blood test for your thyroid hormones. It has to be the earliest possible, fasting (you can drink water) and allow a gap of 24 hours between last dose and test and take it afterwards.

Ask for TSH, T4, T3, T4, Free T4, Free T3 and antibodies. (if you know you have antibodies you don't need this one). If GP or lab wont do all of these you can have a private one from one of the recommended labs. They are home pin-prick tests and you must be well hydrated a couple of days before blood draw.

Your Free T4 and Free T3 are necessary even if doctors are unaware of this phenomenon and read on the following link why they are necessary.

thyroiduk.org.uk/tuk/testin...

Your dose of NDT may not be high enough.

Also ask GP to test B12, Vit D, iron, ferritin and folate. If low these also cause symptoms.

Get a print-out of your results with the ranges and post for comments.

thyroiduk.org.uk/tuk/about_...

[Harrydog49 in reply to shaws]

Thank so much for your reply,I will go and see my doctor,for tests,but I won't hold my breath, because he doesn't seem to like doing to much for me,and I am only allowed to ask 2questions.i will put my results on here.thanks very much.

[shaws Administrator in reply to Harrydog49]

When we take NDT our results may not correlate in that they were invented for levothyroxine alone and NDT contains all of the hormones. They will still be helpful.

When we take NDT, the usual way is to begin on a dose and if still symptomatic we increase by 1/4 tablet every week or so until we are symptoms free.

I'll give you a couple of links which may be helpful.

web.archive.org/web/2010103...

nebula.wsimg.com/b822d36efe...

[Harrydog49 in reply to shaws]

Thank you very much for your reply,I will try to increase my tab's,and see if it helps,I appreciate all the help that I have received on this forum.

[bantam12]

You should insist your heart is checked, my husband had shoulder pain and it was a silent heart attack.

[Harrydog49 in reply to bantam12]

Hi thank you for your reply,I will see if my doctor will do anything for me,and I will let you know.thanks very much.

[Puska in reply to Harrydog49]

And don’t assume everything we feel is thyroid based. This sounds very different and should be checked out by Dr.

[Harrydog49 in reply to Puska]

Hi thank you for your reply,I always think that everything is my thyroid,but as you said,it might not be.my doctor said it is my muscles.and I'm waiting for physio.

[thyroidquest]

You should see an osteopath for a proper diagnosis. They will tell you whether it's musculoskeletal or referred from something visceral. They will then advise next steps. They will want to know about your meds and medical history. Please don't leave it. Best wishes..

[Harrydog49 in reply to thyroidquest]

Hi many thanks for your reply.i am seeing my doctor this week,if possible,it's like trying to get get gold,out of a Apple, trying to see my doctor.its really nice to have people who understand,most people don't understand, what it's like,even family.thank you.