Hi all,
I’m new to the site. I have Multiple Sclerosis, and have recently been diagnosed with a hyperactive thyroid.
I have had MS for just over 20yrs, but I am trying to get used uk the whole thyroid drama.
I stopped taking the thyroid meds for about 2 weeks as I’m fed up with it all. Can anyone recommend ways they’ve found to be helpful in dealing with it, as I honestly want to stop the meds completely.....
Might help if you told us exactly what the problem with levo is. How much are you taking? How recent is recent? Do you have any lab results - if so, post them with ranges and that would help enormously. We do need more information than you have given us. 
Welcome to the forum!
Welcome to our forum Natty219 and am sorry you have hyperthyroidism on top of MS. Something you didnt' really need.
I can understand your reluctance to take more medications but they will have to control your hyperthyroidism which may make you more unwell without the necessary medications.
Members with hyperthyroidism will respond on how they improved their condition. In the meantime I will give you a link which may be helpful and this is an excerpt:
If you have hyperthyroidism the available treatments are antithyroid drugs to reduce the production of thyroid hormones; surgery to remove all or part of the thyroid gland; or radioactive iodine to reduce the activity of the thyroid. Your doctor will discuss treatment options with you.
At the start of treatment your doctor will carry out blood tests usually every few weeks. The results will help to fine-tune your treatment. You will normally have less frequent tests when you are stable on your treatment. In hypothyroidism, a TSH test once a year will check that levels are within the reference range. In hyperthyroidism the usual tests are TSH and FT4; how often these take place will depend on the treatment.
You will have additional tests if the results are abnormal, and you should tell your doctor about any change in your health between blood tests. If your results are normal, but you still don’t feel entirely well, ask your doctor whether there is room for a slight adjustment of your dose. This can be considered if your TSH level can be kept within the reference range. You should not, however, alter your dose without discussing this with your doctor.
Once you start on levothyroxine it may take several months before your symptoms improve even if the tests are biochemically satisfactory. This is especially the case in patients with a history of Graves’ disease who may have been hyperthyroid for many months and who may take a considerable time to adjust to feeling ‘normal’ with biochemically satisfactory tests following radioiodine or surgery.
Hi Natty, have they tried naltrexone for your MS? It was used in high doses for alcoholism, etc. but they found that in low doses it helped with MS but now almost any autoimmune condition may be treated. You certainly must have autoimmune issues. You could post and ask those who have tried it as I know some members have used it.
webmd.com/fibromyalgia/news...
Hi Heloise,
Thank you so much for your suggestions. That’s really interesting. I unfortunately so suffer with Neruo pain which is often a massive pain.
I’ll definitely take a look at the link. I have a friend who suffers with Fibromyalgia, we consistently moan about the same things 😊😊
It's interesting in the way it works but there are no side effects to speak of. Some people may experience bad dreams at first. It's also not an expensive drug normally but you know what's happened there. Such manipulation by Big Pharma.
You’ve sold it to me! Lol. Its interesting talking to people to see and how they manage with their symptoms.
Of course, nothing works for EVERY body but often doctors will neglect recommending something outside the pharmaceutical area. Fortunately there are naturopaths who know much more about these things. Keep posting.
Sorry to throw more information at you and I'm just learning about this myself. The cranial nerves and especially the vagus nerve are very involved in many symptoms. The vagus nerve is attached to every organ. Heart attacks may be induced by this nerve when it is malfunctioning. There are methods to stimulate it. I'll just say, cold is better than hot. Something you can keep in mind because neurological problems seem to be the basis for almost everything.
Ahhhh so you were diagnosed hyper! It would have been helpful to tell us that.
OK, so THE most important thing is to get your antibodies tested, so you know exactly which disease you're dealing with : Grave's or Hashi's.
I am seeing the endro this Thursday. I plan on getting ALL of the information to better understand this stuff. I’m on point with MS stuff. Need to be a pro about thyroid drama now.
I can't help with the thyroid but this might be of interest to you, I know of someone who has controlled her MS by eating tomatoes - others too have copied her and found the same. She has to eat a huge amount, kilograms per day.
Best of luck Natty and I'd be delighted to hear if it works as well for you.
We have read of some MS patients trying very large doses of biotin. (Far more than we would ever get in our diets or with "ordinary" supplements.)
Not making any comment on that in itself but, if you do take biotin supplements, they can significantly affect some blood test results - including TSH, Free T4 and Free T3. It depends on the actual technology of the test and some processes are immune to biotin interference. Typically, TSH will be seen to be low, and FT4 and FT3 high - but no guarantee from me that would always be the case.
For ordinary biotin doses, two or three days without extra biotin will remove the interference. Last I looked, there had been little to no research into how long a break from super-high doses of biotin would be required.
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