Started with myxodema 1977 and placed on 300mg thyroxin day.
My recent tests show:
Serum TSH level 0.09 miu/L
Over years BEEN reduced to 250, 200, 150 now
Gp insists on reduction of medication to 125mg
This despite ongoing muscle pain etc can anyone help please.
Would you be able to post your latest thyroid blood test results including TSH, FT4 and FT3 (if you have it) and thyroid antibodies results TPO and TgAb. Remember to include the laboratory ranges along with the test results as labs can vary and we need them to interpret your results.
If in the UK, which thyroid tablets are you taking and have you ever been switched to a different formulation?
If you've got results from vitamins blood tests then post those too. People will be able to give you some good suggestions if you're able to supply the basic information.
Thyroid function test
Serum free T4 level 21 pmol/L [9.0 - 25.0]
Serum TSH level 0.09 miu/L [0.3 - 5.0]
This is the full report I received .
Hope its understandable.
It would be good to get your FT3 level tested too. I don't know which country you're in. If the UK, you might have to get a private lab to do TSH, FT4 and FT3 altogether. Thyroid UK website has a list of reliable laboratories.
From these results and without viewing an FT3 result it looks like you are adequately replaced. That does not mean everything is ok though.
Firstly, you need full thyroid tests including antibodies TPO and TgAb to find out whether you have thyroid autoimmune disease otherwise known as Hashimotos.
Secondly you need to have your vitamin levels tested. Ferritin, B12, folate and vitamin D. People with thyroid conditions are often deficient in these.
Have you got any gut dysfunction? Are you taking any other medication?
If in the UK, it's only since 2015 that thyroid medication has been regulated effectively as previous to this, thyroid medication was not bioequivalent which meant that if you were switched between forumlations it could have a very big difference in the amount of medication you needed to take to keep your TSH level at the same place. An investigation into levothyroxine showed a nearly 50% difference between the most effective and lease effective levothyroxine.
In addition, if you have Hashimotos, your thyroid blood test results can vary as a result of the action of antibodies. There fore, you need to think back on whether you were switched between levothyroxine formulations and you need to know whether you have thryoid antibodies to begin to understand why your levvothyroixne dose may have been so varied. Body weight can also influence the amount of meds you need to take.
You symptoms are likely vitamin deficiencies.
What are your other results? T4 and T3. Gave you checked B12 and vitamin D? Are you on levothyroxine?
TSH is largely irrelevant on Thyroid replacement
Essential to know FT4 and FT3, Thyroid antibodies and vitamin D, folate, ferritin and B12
If you can't get full thyroid and vitamin testing from GP
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw or
All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after.
Hi Bobbity, welcome to the forum.
Our needs vary over time, and 40 years after your first diagnosis you need full testing to see how you are doing now. Get those full tests and post them on here and show them to your doctor.
In addition to thyroid problems you may also be low on various vitamins and minerals; this can prevent your medication from working fully. Many of us have low stomach acid which means that we don't absorb all the vitamins and minerals that we need.
Please don't let your doctor keep on reducing your thyroxine.
Read and learn as much as you can, so that you can have a useful discussion with your doctor. A good place to start is the Thyroid UK site.
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