I was diagnosed hypo over twenty years ago and prescribed levo - 100mg daily. In 2007, 10 mg daily of liothyronine was added. In 2010 the lio was increased to 60 mg daily. For the first time in over twenty years, I felt well again. I lost all the weight I had gained, felt healthy and had lots of energy. I slept well. Apart from regularly arguments with various gps over reducing levo and stopping lio every thing was great.
In late 2014 everything changed for me. I have gained almost a stone and a half, I am always tired and always hungry. If I don't eat every couple of hours I feel really ill - very nauseous, severe headache, very weak and very irritable as my husband will attest! I have no hair under my arms or at the end of my eyebrows. My toe nails grow at a tremendous rate as does the hairs on my legs. I have lots of tummy problems - pains mostly gripey in nature sometimes quite severe and alternating bouts of constipation and diarrhea.
My thyroid tests vary quite a bit although this is partly due to the increased time I stop meds prior to a blood test. One of my blood tests was done within a couple of hours of taking my meds as the endo insisted I have a test immediately!
My gp is not prepared to consider any tests what so ever. If I complain of feeling unwell his only answer is to instruct me to stop lio. I did try reducing by a tiny amount last year and became really ill - I could not function mentally and was really tired although unable to sleep. Gained several pounds. I went back up to my regular dose. He then insisted I reduce levo - again I tried reducing a tiny amount. I was really hungry, severe headache etc. Again I returned to my regular dose.
After reading many articles on this site, I wondered if I should try going gluten free.
I don't think this would be too difficult for me most of the time. I cook most of my own bread so I'm sure I could master a gluten free loaf. I rarely eat cakes, puddings or biscuits.
The big problem that I have and do not know how to get round, is what I eat when on holiday. My eldest son, lives in Stutgart so I travel there four or five times during the spring and summer. I spend one to two weeks there at a time.
I have been a vegetarian for over forty years so eating anything with meat or fish is not an option for me. I have to carry food with me whilst travelling. Going out to Germany would not be a problem but I don't know what I could eat coming back.
I have just returned from Germany and whilst there I made a big effort to look for gluten free food. As far as I could see, it does not exist anywhere near where my son lives.
Can anyone offer me any help or advise on what I can eat whilst travelling particularly from Germany. As we live along way from an airport in England, it takes approx 9 hours door to door. As far as I could find out there is no gluten free option at Stuttgart airport. We regularly visit Italian, German and Indian restaurants, none of them specifically offer gluten free, is there anything that is likely to be gluten free at these restaurants? Are all vegetables gluten free?
Would it be helpful for me to be gluten free whilst at home but eat gluten whilst on holiday? Or am I likely to benefit only if I am gluten free 100% of the time?
Not going to Stuttgart is not an option - my son works very long hours and is not able to come to the UK very often so we have to visit him.
Any help or suggestions would be greatly appreciated.