Newbie high TSH: Diagnosed 2013 and take 75mcg... - Thyroid UK

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Newbie high TSH

Naomi_J profile image
9 Replies

Diagnosed 2013 and take 75mcg levothyroxine and 10mcg T3 endo asked to increase levothyroxine to 100mcg. Terrible brain fog and inability to concentrate or focus, tired all the time. Endo said it would take a few months for body to catch up with biochemistry. Explained this to manager at work who said that is time she doesn't have.

Thankyou for any advice.

TSH 6.80 (0.2 - 4.2)

Free T4 12.8 (12 - 22)

Free T3 4.1 (3.1 - 6.8)

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Naomi_J profile image
Naomi_J
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9 Replies
cjrsquared profile image
cjrsquared

Do you work for an employer who has an occupational health department? if not if you belong to a union ask for their advice. My occupational health department told my employer that hypothyroidism was covered by the disability at work act and reasonable accommodation needed to be made.

Hopefully this would stop your manager in her tracks. Goodluck

Naomi_J profile image
Naomi_J in reply tocjrsquared

Thankyou no my manager has no occupational health department she is self employed

SlowDragon profile image
SlowDragonAdministrator

Do you also have high thyroid antibodies? You need to know. Did GP ever test these? If not ask that they are tested.

If antibodies are high this is Hashimoto's, (also known as autoimmune thyroid disease). About 90% of hypothyroidism in UK is due to Hashimoto's.

Hashimoto's very often affects the gut, leading to low stomach acid, low vitamin levels and leaky gut.

Low vitamins that affect thyroid are vitamin D, folate, ferritin and B12. Important to test these. If they are too low they stop Thyroid hormones working. Have these been tested? Ever or recently if not ask that they are. Always get actual results and ranges.

If you have Hashimoto's then hidden food intolerances may be causing issues, most common by far is gluten. Changing to a strictly gluten free diet may help reduce symptoms and eventually start to lower antibodies. Very very many of us here find it really helps and can slowly lower antibodies, improving symptoms

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

Naomi_J profile image
Naomi_J in reply toSlowDragon

Thyroid antibodies are

Thyroglobulin antibody 376 (<115)

Thyroid peroxidase antibody 488.3 (<34)

SlowDragon profile image
SlowDragonAdministrator in reply toNaomi_J

So very positive for Hashimoto's

Strongly suspect low vitamins. Have you had vitamin D, folate, ferritin and B12 tested recently? If not ask that they are done ASAP

Always get actual results and ranges.

If GP is reluctant you can say you have had advice from NHS recommended thyroid support group

Changing to strictly gluten free diet very likely to help.

Taking vitamin C to support adrenals is good idea. No need to test first.

Also selenium supplement, recommended, again no need to test first.

Only ever add/start one supplement at a time. Wait 7-10 days to see reaction. Before changing/adding another.

Read as much as possible about Hashimoto's. Medics are often clueless.

Scazzoh profile image
Scazzoh

Your TSH should be below 1 if you are receiving treatment Your T3 and T4 are barely scraping the lower range, so you are seriously undermedicated. Why did he increase the Levo and not the T3 I wonder? You might get a quicker improvement with a bit of extra T3.

Naomi_J profile image
Naomi_J in reply toScazzoh

Thankyou endo said she is reluctant to increase T3 because of symptoms of acute toxicity

SlowDragon profile image
SlowDragonAdministrator in reply toNaomi_J

Probably due to low vitamin levels

Scazzoh profile image
Scazzoh in reply toNaomi_J

If you were thyrotoxic, your T4 and T3 would be over range, which they aren't.

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