Thyroid UK
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Is. Fibromyalgia linked to thyroid

Hi folks,

Was reading a post and lost it, but fibro was mentioned I was just wondering what the link was. I have had fine for 17yrs then diabetic

now under control.

Secondary Addison's diagnosed 2015 on hydrocortisone putting weight on! Still very tired takes little to tire me. My thyroid levels are borderline .any advice would be appreciated. Oh were can you get private blood tests done in n Ireland for thyroid?

Many thanks

Eleanor

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I think the questions is - and a lot of people aren't going to like this, but I'm not going to argue the point - but the questions is : does fibro really exist or is it all un-diagnosed/under-treated thyroid problems? It's a question that doctors never seem to ask themselves, and just use fibro/ME/CFS as dustbin diagnosis. That is to say, if they have no idea what's wrong with the patient - and, let's face it, the majority don't have the slightest clue about thyroid - they pick one of those labels with a pin, and stick it on the patient. They can then blame everything that happens to the patient, on the label, hand out pain-killers and antidepressants, and forget about them. Makes life so much easier for doctors. But, many so-called fibro patients seem to get better if and when they manage to get correctly treated for hypo. That seems, to me, to be the link.

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Many thanks grey goose

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You're welcome. :)

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It's been confirmed more recently that fibromyalgia is a central nervous system disorder. However, many people are misdiagnosed with it when really they have untreated or poorly treated hypothyroidism.

Can you post your 'borderline' results, with ranges, because that may actually be the problem.

You may want to join the fibromyalgia action uk forum too.

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Thank you will ask for copy and post

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I see that there are nine pairs of tender points used to diagnose fibromyalgia. I wondered if fibromyalgia would explain some of my symptoms, but I don't have enough tender points, nor are they in the right places!

If you don't want to do a finger prick blood test, it's possible to have the blood drawn at a private hospital. Unfortunately, this company doesn't show any possibilities for Northern Ireland: bluehorizonmedicals.co.uk/l...

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There are 9 tender points on each side of the body in the same spots on each side... So 18 total.. To be diagnosed with Fibromyalgia you have to have 11 or more outta the 18 tender points.

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Many thanks

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I think there is a fuzzy line between thyroid and fm. Around the time I was diagnosed with fibro one doc mentioned testing positive for Hashi's but nothing was done or suggested at the time 🤔. Perhaps for some it becomes a "double crush" syndrome (one morphs the other or they co-exist). I'm not a researcher or doc so I can only offer my experience. But certainly the body aches and brain fog are exactly the same. I even heard it suggested that fibro can be the result of trauma - absolutely I can see that (I also have PTSD). The point is not all my experiences exactly correlate with FM, and ditto Hypothyroidism. Likely there will be no answers in my lifetime. All we can do is move forward and not passively take all health advice from our gps as they haven't a clue IMO. X Rusty

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Hi many thanks I had a lot off trauma before I was diagnosed it's oyinteresting

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Here's something I copied and saved, that somebody else posted a link to on here, but I seem to have missed off the end, sorry:

What about Thyroid Hormone Resistance - and I very much doubt anyone in the UK is aware of such a diagnosis. This is a small excerpt as I do know you have disabling symptoms, it would appear. Excerpt:

Dr. Lowe: If a patient has either "general" or "pituitary" resistance to thyroid hormone, this is indicated by the results of thyroid function tests. However, our studies suggest that perhaps 40% of fibromyalgia patients have "peripheral" tissue resistance to thyroid hormone—not pituitary or general resistance.

Patients who have peripheral tissue resistance to thyroid hormone have normal thyroid test results before treatment with thyroid hormone. So, we don't know that they have peripheral resistance until we've treated them with plain T3. (Of course, we treat them with T3 as part of more comprehensive metabolic rehabilitation). A three-part therapeutic outcome tells us which patients have peripheral resistance.

First, resistant patients recover from their hypothyroid-like symptoms and signs only with extraordinarily large dosages of T3 (called "supraphysiologic" dosages). Second, despite these large dosages—which might hospitalize a person who doesn't have tissue resistance—the patients have no indication of tissue overstimulation. (We use various objective tests to rule out overstimulation, such as serial EKGs and various biochemical tests. We also closely scrutinize patients and use various physical exam procedures such as the Achilles reflex test.) Third, although the patients have recovered from their symptoms and signs with high dosages that don't overstimulate them, lab tests show that they have extremely high blood levels of free T3.

web.archive.org/web/2010103...

Two excerpts from another link by Dr L:

"The fact is, however, TSH and thyroid hormone levels are highly unreliable indicants of whose body is under-regulated by thyroid hormone. The levels are so unreliable that the testing should be abandoned as the standard method for identifying such patients."

and

"Many researchers have noted that fibromyalgia symptoms are virtually identical to those of hypothyroidism.[56][57][58][59][60][61][62][63][64][65][66][67][68] Indeed, as my collaborator Jackie Yellin, has shown, the most well-documented features of fibromyalgia are exactly the same as features of hypothyroidism (see Table 1).

Studies by several research teams indicate that 90% of fibromyalgia patients have underlying thyroid diseases.[69][70] Studies by researchers in the U.S., France, Germany, and Italy show that these thyroid diseases include primary and central hypothyroidism and peripheral cellular resistance to thyroid hormone.[57][71][73][74][75][76][78] It’s important to note, however, that most patients’ fibromyalgia symptoms caused by thyroid disease are compounded by other metabolism-impeding factors. The most common factors are poor diet, nutritional deficiencies, poor physical fitness, and metabolism-impairing drugs.[25]

"

When fibromyalgia patients receive effective treatment for hypothyroidism or peripheral thyroid hormone resistance, most are fully and lastingly freed from their fibromyalgia symptoms. Several open but systematic trials and several blinded studies have shown that metabolic treatment including thyroid hormone therapy completely relieves most patients’ symptoms.[16][72][77][79][80][81][82][83] In another double-blind crossover study, researchers reported a positive therapeutic effect on fibromyalgia from transdermal T3.[14] In a randomized double-blind, placebo-controlled study, clinicians used multiple therapies.[13] In that study, as Peter Warmingham noted in an article titled "Fibromyalgia has been solved,"[12] 90% of the fibromyalgia patients used thyroid hormone and 90% improved. These are the only studies in which patients have largely or fully recovered from fibromyalgia symptoms; each involved thyroid hormone therapies other than T4-replacement, an approach documented to fail to relieve a large percentage of hypothyroid patients of their symptoms.

"http://web.archive.org/web/20101030171110/http://drlowe.com/frf/guttler/addenda.htm#Addendum 1

p.s Peter Warmingham has written about the 'Myths of TSH'.:-

thyroiduk.org.uk/tuk/thyroi...

Dr Skinner and Dr Peatfield paid no atte

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Many thanks

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Some people have cured or had there fibromyalgia under control by taking antiviral meds. So, if fibro is caused by a virus, the virus may well attack the thyroid. its soo complicated, I also saw a YouTube video about a woman being cured from fibro with thyroid meds that was over 12 years ago. Drs don't know much and unless you got money to go private your diagnosed and sent home to rot.

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Thankyou

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