Got my fnb results today and all clear. Relieved big time. Back to the drawing board though as to why i have this feeling of thyroid problem and large nodules yet normal results, endo did clearly state my thyroid is struggling but thats that. I asked receptionist for my latest results and ranges but endo is off until sept and he keeps his own paper work as he works at the clinics. Oh well, will have to wait until then and then follow up appointments in 3 months.
In the meantime is there any thyroid support products that you can buy that people use that may balance my thyroid out.
Thanks
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Irishjen
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If you can afford it I'd get my own private tests. We have recommended labs and you have to wait another three months just to have an appointment. He has already said your thyroid is struggling but I wonder if he has done an FT4 and FT3 blood test, as that would show a clearer picture and I'll give you a link and within it you will see why it is advised to have these.
I did go private. He did all thyroid and antibodies along with female hormones vitamin b d iron ferritin etc and ultrasound and fnb, my largest nodule was 3cm x 2cm. He supposedly looks more at symptoms and not results so in my case he is pretty sure its not thyroid but says my thyroid is obviously struggling. The only test he didnt do was rt3 as we have no labs in northern ireland that will test it. He told me to take some iodine amd that was it amd he will see me in me in 3 months.
Im frustrated to be hones. I feel like i have become obsessed that its thyroid related but all tests show its not and i generly feel not too bad apart from when i do any sort of exercise even a walk then an hour or so later wam something is happening in my body that makes me exhausted, headaches, depression, irritable, insomnia aetc and this lasts a few days and then i feel not so bad again.(my hair is falling out at the temples amd outer eyebrows also ) the only thing i dont fet is cold and my tsh which has been done twice in r months is 0.28 and 0.27 so the lower end of the scale and usually hypo sympts would have a higher tsh reading ( i am led to believe ) strange and no one believes me not listens to me and doctors dont have the answer. I must say though that nascent iodine picks me up a little.
I will get those results from him when he gets back. He works in belfast but lives in canada and goes home for month or so in august.
Im going to reorder t3 and rt3 myself and purposely do a workout and see if it shows anything different when i am feeling at my lowest.
Until then i am looking into some sort of thyroid support that i can buy that is safe to take without a thyroid diagnoses in tne hope it balanaces out what js going wrong.
Did the specialist say that the tests didn't seem to be connected to hypothyroidism even though he said your thyroid gland was struggling . Did he test thyroid antibodies and I know you wont know that answer yet as you've no result.
Is he uncontactable, even if he is in Canada, that he cannot email you a copy of your blood test results?
The best tests are Free T4 and Free T3 and I'll give you a link and read about why these are necessary and I'll also give another link. Sometimes your instinct points to a condition but nowadays, due to blood tests only being used and not also clinical symptoms (symptoms were always taken as confirmation before blood tests were introduced.
Any blood tests have to be at the very earliest, fasting (you can drink water) and if on thyroid hormones you'd allow 24 hours between last dose and test and take afterwards.
He did test antibodies and said they were normal. I have a letter at home that he wrote to my gp and it just tells gp what testa he carried out and results were normal. (Im on hols at the minute so no letter with me ) the actual numbers on the results and ranges arent om the letter. I did ask earlier if he was contactable by email and the nurse just said he is on holidays until sept so i just left it at that. Ill have to wait until sept i guess. Not great when he was paid a fortune.
He didnt say they were or werent connected to hypothyroidism but just that it seems to be struggling and that he will follow up in 3 months
The blood tests werent taken in the morning it was at night and i had also taken iodine that day.
Honestly i am like a broken record at the minute about my thyroid because in my mind and how i feel its thyroid related. I dont know why i am convinced its thyroid, think its because nearly all my female relations all have thyroid issues, hasi, thyroid cancer etc etc and well the eyebrow, hair loss, weight gain, nodules, depression at times, lethargic etc etc all seems thyroid related.
Ill hold off on the rt3 etx for now amd just wait for a month until je gets back.
Ill have a look on line for thyrpid suport supplements and just take it easy for a while.
Very frustrating on holiday and can't do my usual watersports, cycling etc etc im fear of being exhausted and headache for days. Spent a day in the pool the other day and was exhausted and super fed up for a few days.
Did you get your iodine tested before starting to supplement? I'm amazed that your private endo told you to take it! He obviously doesn't know very much about thyroid - he's not worth the money, however much you're paying him! If I were you, I would stop the iodine immediately. It will make things worse, and could trigger Hashi's - if you haven't got it already.
And, on the subject of Hashi's, did he do both tests? TPO and Tg antibodies? You cannot rule out Hashi's on the basis of one negative blood test. Antibodies fluctuate - and, besides, not everybody with Hashi's develops high antibodies. And, if you have Hashi's, you definitely shouldn't be taking iodine.
At what time of night were the tests done? The TSH was probably at a low ebb at that time, and would have been higher first thing in the morning, and fasting. On that basis, I would ask for another test - or do a private test (no endo involved) and get all the results you need. Although, I don't think that at this point it is useful to do rT3.
Good news that the nodule is benign. Nodules rarely affect thyroid levels and don't generally cause hypothyroid symptoms so I wonder what your doctor meant when he said your thyroid is failing?
TSH 0.27 and 0.28 rule out primary hypothyroidism due to thyroid failure but TSH only testing can't exclude a diagnosis of central hypothyroidism which presents with low-normal TSH and low FT4 and FT3. Central hypothyroidism is caused by lack of TSH stimulation to the thyroid due to pituitary or hypothalmic dysfunction. Thyroid is usually healthy in central hypothyroid patients.
If you are not taking Levothyroxine or NDT it is very unlikely you will have high rT3 which occurs when unconverted T4 converts to rT3 instead of T3.
Iodine supplementation is very contentious and used to be prescribed to hyperthyroid patients to reduce T4 and T3 production. You should certainly be supplementing 200mcg alongside iodine.
Those results are euthyroid (normal). Results are very good with low TSH, mid-range FT4 and FT3 in the upper third of range. Your thyroid levels don't indicate any thyroid dysfunction. I'm baffled why the endo said you have thyroid failure.
Negative thyroid peroxidase antibodies (TPOab) don't conclusively exclude Hashimoto's. Some people are negative for TPOab but are positive for thyroglobulin antibodies. NHS primary care doesn't usually test thyroglobulin antibodies. You'd have to order a private test for that.
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Frustrated with results ... getting a 2nd opinion from a different Endo ... what do you all think? 
Request for help with results please - endo appt pending! Apologies for long post
New test results 
Results .... 
Help needed with my results which are totally confusing this time around please .
