Hi, I've just joined and have a question - Thyroid UK

Thyroid UK

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Hi, I've just joined and have a question

Dawn1201 profile image
7 Replies

Hi, I've only been diagnosed hypo since march but i think I've had it a while, since I've put 4st on in 2 years.

Im on Levothyroxin 50 micrograms a day.

Doctor wont up my dose even though i still feel like crap!

She is however sending me for a throat scan because it feels swollen on one side and keeps clicking when i swallow and feels tight.

Just wanted to know if anyone had any similar symptoms?

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Dawn1201 profile image
Dawn1201
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7 Replies
greygoose profile image
greygoose

I haven't had the same symptoms, but it wouldn't surprise me if you have them because you are under-medicated. 50 mcg is just a starter dose. What reason did your doctor give you for refusing to increase it? Do you have a copy of your latest labs? If not, ask for a print-out. If you live in the UK, it is your legal right to have one.

Learn about your disease, read as much as you can. Challenge your doctor. If she sees you know what you're talking about, she's less likely to try and fob you off with rubbish. :)

Dawn1201 profile image
Dawn1201 in reply to greygoose

Ive got my lab print out, they said they wouldn't up my dose because I'm in range.

My latest TSH was 2.70 range is (0.27-4.2)

greygoose profile image
greygoose in reply to Dawn1201

2.7 is too high. Once you are on thyroid hormone replacement, the TSH should be one or under. The range is for diagnosing,. Once you are treated you shouldn't be dosed by the TSH. Your doctor doesn't know much about thyroid, does she. I think you are going to have to insist.

Or, if all they are willing to test is the TSH, get a private test. You need :

TSH

FT4

FT3

TPOab

TgAB

vit D

vit B12

folate

ferritin

Once you've got all that, post the results on here, and people will explain them to you. Then, you can go back to your GP with a knowledgeable request for an increase. You'll end up knowing much more than her!

Details of private tests on the Thyroid UK main page. :)

Dawn1201 profile image
Dawn1201

Thank you,

I asked if i could have the other tests and they said they only do the TSH unless its out of range (which it was when i was diagnosed) and then they do T4 as well

Dawn1201 profile image
Dawn1201

When my latest tests came back, on the report it said no further action needed stay on 50 micrograms.

Even though at the top it

had a list of my symptoms that i told them

Helsan profile image
Helsan

My Consultant has told me that TSH should be below 1 when you are treated with T4 (levothyroxine) ask to see an endocrinologist.

Dawn1201 profile image
Dawn1201

Will do thanks

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