What to do next to get better ?

[Caroline59]

Having posted on here earlier this year, and having received excellent advice about my Levothyroxine dosage and optimising my vitamins and minerals levels, I need your help again.

Since raising my dosage of Levothyroxine from 100 to 150 over the past 5 months I managed to rid myself of migraines, aching joints, brain fog etc. But what I have now is the most awful heel pain, to the point of ,if I go out for a moderate walk the pain increases to such that I have to go home as hurting so bad.

Have tried all the usual remedies, stretching, hot / cold therapy, instep supports etc etc.

Will it help if I try to add some T3 or NDT ?

[SeasideSusie Remembering]

Caroline59 If you post your latest results, with reference ranges, we can see whether you are optimally medicated or if there is room for improvement and how best to achieve that.

[Caroline59 in reply to SeasideSusie]

SeasideSusie

My last test in May

THS 2.16 ( 0.27-4.20)

Free T4 17.9 ( 12.00-22.00)

My Levothyroxine was increased to 150 after this test.

I am due another test August.

[SeasideSusie Remembering in reply to Caroline59]

Caroline, you need to see the results of your latest tests, and to know if you need T3 you will need your FT3 tested at the same time as FT4, and I doubt whether you'll get that done by your GP so that would mean a private test.

But as Clutter has said, the heel pain could be something else altogether.

[Caroline59 in reply to SeasideSusie]

SeasideSusie

Thank you, I will have to get tested again privately.

[Clutter]

Caroline59,

Have you seen your GP? The heel pain may not be anything to do with thyroid levels.

[Caroline59 in reply to Clutter]

Clutter

Seen GP about 12 months ago, referred to Physio then to podiatrist. Inserts for shoes and exercises to relieve the pain.

Was coping with stiffness in feet when getting up from resting etc, but when I started to increase my Levothyroxine, the heel pain kicked in and having just increased again the pain is awful.

[SlowDragon Administrator]

I have had excruciating heel pain (plantar fasciitis). Mine was definitely thyroid related, been much improved, since recently started T3/T4 combo under endo guidance.

There are a view posts about plantar fasciitis. It can be connected to being hypo or hyper.

I think personally it's too much T4 and or low T3.

[Caroline59 in reply to SlowDragon]

SlowDragon

I was just reading one of your post from a few years ago. Very interesting.

About the Vit D and B5

[SlowDragon Administrator in reply to Caroline59]

I guess it's this article (recently updated I think)

drgominak.com/sleep/vitamin...

[Caroline59 in reply to SlowDragon]

SlowDragon

That's the one

I could not read it as not available!

So will be reading it later, thank you...

[SlowDragon Administrator]

Have you got recent tests results for vitamin D, folate, ferritin and B12?

Considered doing DIO2 gene test? Not cheap but if it can back positive it might help persuade endo to prescribe T3

[Caroline59 in reply to SlowDragon]

SlowDragon

Ferritin 96 ( 13.00-150.00)

Folate 11.7 (3.90-20.00)

B12 907 > 180.00 ( now just taking B complex)

Vit D 125 ( no range given)

These results were in May

[Print1972]

Hi. I started with heel pain, Achilles tendonitis and knee stiffness, bout 3 weeks after I was put on Levo. Every time the dose was increased it got worse. I decided to drop down from 100 to 50mcg. The pain decreased but of course tiredness started to kick in. I tired a physio, padiatrist, and saw the doctor. She even said thyroxin could cause this. She was great and did say that my problems had started when I'd gone on to levothyroxine. After my dose was increased to 125mcg, the pain increased to a point where I could no longer be active. I then read the advice here and decided to self medicate. I'm still in the early stages of NDT. So far so good. The pain in my knees and feet has gone. The achilles had improved significantly. I'm hoping in a few weeks, the tendons will have repaired significantly. I'm now able to get up from a resting opposition, and not walk like an old man.

[Caroline59 in reply to Print1972]

Thanks for your reply, that's very interesting.

Seems to be very similar to what has been happening to me..

May I ask what NDT you are taking, and how you are getting on?

[Print1972 in reply to Caroline59]

It's still early days. I'm on Thyroid S. I'm doing well. Taking it step by step. Up to 11/2 grains. I'm undermedicated on that dose, but will wait another week to increase again, as to much to soon, doesn't give my body the chance to get used to the T3.

The pain in the heels is called plantar fasciitis

[Caroline59 in reply to Print1972]

Print1972

Thyroid S. I was going to order some after my next blood test in August,to see if that would improve things.

Thank you !

[gazann]

My hubby has the same pain in his foot.the doctor called it policemans heel