Blood Results : I have just changed doctors who... - Thyroid UK

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Blood Results

Serendipity_28 profile image
12 Replies

I have just changed doctors who have stopped all my medication as she is saying I don't have a thyroid problem, despite being on 100mcg for 3 years.

My results were TSH 7.8, my doctors don't test anything else.

I have never had particularly high levels, even when I was diagnosed it was only 10.

I know these are often only described as sub-clinical hypothyroidism but I still get alot of symptoms, even when I'm on levothyroxin.

I was just after a bit of advice as to what to do as I am really struggling with all my symptoms. I have had to go down to part time at work mainly for my tiredness and fatigue, but also for the pain in my legs, feet, hands and arms.

Sorry the length btw. Thanks in advance.

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Serendipity_28 profile image
Serendipity_28
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Clutter profile image
Clutter

Serendipity_28,

Was your TSH 7.8 while you were taking 100mcg Levothyroxine?

Serendipity_28 profile image
Serendipity_28 in reply toClutter

No, that was my latest result when the doctor took me off levothyroxin. Last time it was done, it was 5.6 on 75mcg which is when they put me up before I moved

Clutter profile image
Clutter in reply toSerendipity_28

Serendipity_28,

Are you saying you were taking 100mcg and when you tested your TSH was 7.8 and your GP took you off 100mcg?

Serendipity_28 profile image
Serendipity_28 in reply toClutter

Yeah as they said this wasn't high enough and I don't have a thyroid problem although I have lots of symptoms still

Clutter profile image
Clutter in reply toSerendipity_28

Serendipity_28,

That is so wrong. You were under medicated to have TSH 7.8 on 100mcg Levothyroxine. Your dose should have been increased. The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.4 - 1.0 with FT4 in the upper range. I think you should see another GP at the practice for a second opinion.

Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email enquiries@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

Yikes! How irresponsible of this GP. I'm looking forward to reading Clutters response to this one ;-) .. we are supposed to shoot for 1 or lower with TSH. Can you get a referral to see an Endo? Or better yet find an integrated health practitioner?

Silver_Fairy profile image
Silver_Fairy

Another GP who should change profession 😡

Is there another GP you could see? Ask if you can be referred to an Endo.

Serendipity_28 profile image
Serendipity_28 in reply toSilver_Fairy

I'm going to see a other one next week to hopefully get something, I wasn't sure whether I needed to see and endo as my gp has never mentioned it.

She also seemed to ignore all my other symptoms, she even said she 'doesn't want to know as it's not important'

Fruitandnutcase profile image
Fruitandnutcase in reply toSerendipity_28

I really do think you need to find another doctor even if you have to travel to get there. This one will seriously damage your health if you stay with her much longer.

cwill profile image
cwill in reply toSerendipity_28

A doctor that thinks both blood tests and symptoms are not important? There is nothing that this doctor can do for you as they are not even interested in your health or the current guidelines, that are not fit for purpose. I would be writing a very long letter of complaint to the practice manager about the attitude exhibited and her willingness to undiagnose a life long and serious condition on erroneous views. But you need to feel able to fight to do this so get your drugs reinstated first and find someone worthy of the title of doctor, not simply someone that passed the course.

in reply toSerendipity_28

I'm so sorry you were disregarded/invalidated in this way... and am hoping you can find a better practitioner who will see you on the road to recovery.

I have seen this link posted previously to the Thyroid UK site that can connect you to thyroid friendly private doctors in the U.K.

thyroiduk.org.uk/tuk/About_...

Serendipity_28 profile image
Serendipity_28

I have gotten my blood tests back today and the receptionist said they were normal, I haven't road the actual value yet (getting this on wednesday) .. I am not on any tablets as Said before so I'm confused about my results aso I'm am still getting lots of symptoms

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