I'm getting angry now.

[steviecat]

Anyone on Facebook, if you'd like to comment on my latest post, feel free. At the moment I can't do much to influence events, but any publicity is good publicity. I must warn you, I have gone completely mad!

facebook.com/steve.baintons...

[ajs100uk]

Am I missing something? The link above goes to your timeline and the latest post is 25 Feb from a visitor to your page?

[SeasideSusie Remembering]

I don't do Facebook Stevie. What are you mad about?

[steviecat in reply to SeasideSusie]

Thyroid treatment, Susie - doctor's poor knowledge of the available science.

[bantam12]

The link says page not available.

[Cariad-y-Mor]

Same here...cannot see any new post. 🤔

[Hidden]

I think only friends can see your post. All I see is your timeline.

[Hidden]

Stevie, share with us on HU what you have done. For those of us that don't do Facebook 😦

[steviecat]

Sorry, guys. Thanks for looking - don't know how to help... i've just posted a couple of comments on my timeline. As follows. It was me getting really mad after reading some recent posts on here.

You bloody stupid doctors!!! Why can you not see that TSH is a useless indicator of thyroid health??? TSH is a messenger from the pituitary to the thyroid to produce the pre-hormone T4; it does not give any indication of the amount of ACTIVE hormone, T3, in the body's cells. It is Free T3 that is the important measure. YOU ARE KEEPING THYROID PATIENTS SICK WITH YOUR STUPID ADHERENCE TO OUTDATED SCIENCE. And you blasted endos are just as bad. how dare you reduce life-saving medicines on the basis of a pre-hormone. WISE UP!!!

I am sick to death of hearing tales of people who were doing well on their prescribed hormones only to have them become unwell because their medicines have been reduced on the basis of a TSH test which gives no indication whatsoever of their overall hormonal health. It is tantamount to negligence.

[Hidden in reply to steviecat]

Yep, there's been a good few posts recently shining a ******* great spotlight on medical ineptitude. It's sickening.

It's consoling though that like us, their resilience gets them to this forum where they can get support and guidance from the thyroid angels on here, and gain the confidence to challenge the BS being spouted and/or take control back for their health.

Dr (Prof ???) Toft's report can't come soon enough.

[Ann-Simpson in reply to steviecat]

Interesting post to read. Are you able to give advice as to what range our free T3 should be? I have been taken off T3and have been feeling very unwell since. Would be very pleased to have your advice. Ann Simpson

[steviecat in reply to Ann-Simpson]

Upper quarter of range, Ann.

[Ann-Simpson in reply to steviecat]

My free T3 is 3.74 (3.10 - 6.80). How do you think that is? And would poor conversion be helped with T3? Ann Simpson

[steviecat in reply to Ann-Simpson]

Ann. I am now out of my comfort zone. If the top of the T3 range is 6.8 and you are currently at 3.74, something needs to happen to raise your T3 so it resides in the upper quarter. If that means going back on T3 then, so be it. If you can't get it prescribed, you may have to look for it elsewhere. Let me repeat, I may be happy to do a bit of shouting about poor treatment, but I ain't no doctor.

[Ann-Simpson in reply to steviecat]

Thank you for your quick reply. And I am not a doctor either! Ann Simpson

[greygoose in reply to Ann-Simpson]

Ann, why don't you post your own question, rather than piggy-backing someone else's? You'd get a lot more replies from more experienced people.

[Ann-Simpson in reply to greygoose]

thank you and I have posted quite a few queries on to the website, and have received lots of very helpful replies so am nearly at a point when I can make a decision as to what to do. Ann Simpson

[UrsaP in reply to Ann-Simpson]

Ann-Simpson If you were on T3 and benefiting you should not have been taken off - BTA guidelines. (Unfortunately - guidelines are not rules)

[Ann-Simpson in reply to UrsaP]

Thank you and yes it has been a nightmare but hopefully will be sorted soon Ann Simpson

[Silver_Fairy]

You need to make your comment 'public' on FB

[Silver_Fairy]

Have you seen the T3 action group on FB?

[steviecat]

Have made the post public post now

[Naomi8]

I have left FB & don't want to rejoin