Vitamin D supplements. When will I feel better? - Thyroid UK

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Vitamin D supplements. When will I feel better?

Beckymarie1986 profile image
19 Replies

I've just started taking a vitamin D supplement as prescribed by the Dr. My level was 18 nmol/l and the Dr said it should be above 30. My thyroid is borderline low at I'm on 50mg of levothyroxine also. How long before I notice the effects of the vitamin D supplements.? Currently feeling rubbish.

Many thanks

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Beckymarie1986 profile image
Beckymarie1986
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19 Replies
SeasideSusie profile image
SeasideSusieRemembering

Beckymarie1986 What dose of D3 has your GP prescribed?

Your GP is wrong to say it needs to be 30nmol/L, that just brings it up from Severe Deficiency to maybe Deficiency or Insufficient.

The level recommended by the Vit D Council is 100-150nmol/L.

When taking D3 there are important cofactors needed which you can read about here, but your GP won't know about them because they're not taught nutrition

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.

Magnesium comes in different forms, check here to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds.

naturalnews.com/046401_magn...

Beckymarie1986 profile image
Beckymarie1986 in reply toSeasideSusie

It said on my notes that I have extremely low vitamin D. I'm on 800iu of Colecalciferol for 3 months x

Marz profile image
Marz

What dose of VitD are you taking ? I think you should be prescribed loading doses before going onto maintenance. Your level needs to be around 100 nmol/L .

It is suggested that you should also take VitK2 MK7 with VitD - this encourages improved levels of calcium in the arteries to head for your bones and teeth. Also Magnesium and Zinc are important co-factors.

It can take quite some time to feel better with the VitD - especially if you are on a low dose ...

More information please :-)

Beckymarie1986 profile image
Beckymarie1986 in reply toMarz

I'm on Colecalciferol 800iu once a day. I was told to take it whenever. They're little blue capsules. I'm on them for 3 months.

Thank you

Marz profile image
Marz in reply toBeckymarie1986

Not enough to raise your levels where they should be. If the Doc is not supporting you with loading doses then you will have to go it alone with 5000 IU's daily - Healthy Origins is a good one with the Olive Oil Capsule from Amazon. You need to test again after six months to see where your levels are - and if they are up to a good level then a maintenance dose should hold your levels.

grassrootshealth.net

Look at the chart in the above website that talks about Illness prevention - including cancers.

Do not forget to take the co-factors too. 800 IU;s for 3 months is a joke I am afraid :-)

SeasideSusie profile image
SeasideSusieRemembering in reply toBeckymarie1986

Beckymarie1986 - this is the NICE Clinical Knowledge Summary for treatment of Vit D Deficiency

cks.nice.org.uk/vitamin-d-d...

Which says for levels less than 30nmol/L

"For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU]) given either as weekly or daily split doses, followed by lifelong maintenance treatment of about 800 IU a day. Higher doses of up to 2000 IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders.

Several treatment regimens are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

You can Google for the guidelines for your particular area and they will be very similar.

Go back to your GP and point this out to him and ask to be treated appropriately according to the guidelines, which will include a loading dose as mentioned above. What he has given you is the suggested maintenance dose for someone with a level between 30-50nmol/L which is classed as Insufficiency and 800iu daily will never, ever, raise your level enough.

Please come back and tell us what he says. You may be better off buying your own supplements and suggestions can be made for that.

Beckymarie1986 profile image
Beckymarie1986

Thanks so much for the info. Everyone just says I need more sunshine and do t really understand how awful I feel. Should I go back to the Drs and ask for a dose increase? Just explain that I still feel awful.? I have a feeling they will just tell me to wait for the 3 months..

Marz profile image
Marz in reply toBeckymarie1986

VitD is NOT expensive to buy - Docs have little understanding of Vitamins and seem to under prescribe - sadly. Sunshine if of course ideal - but you have to reveal 40% of your skin without sunscreen between 11am and 3pm. That is not practical for most people.

SeasideSusie profile image
SeasideSusieRemembering in reply toBeckymarie1986

Beckymarie1986 You can try your GP, see what he says. He may be shamed into following the guidelines if you print them off for your area. Google "Guidelines for treatment of Vit D Deficiency YOUR AREA"

You are severely deficient in Vit D, there is no mistake about that, there is no need to wait a further three months, it won't miraculously correct itself.

With regards to everyone who is telling you that you just need more sunshine, print off the Vit D chart that Marz has linked to so that they can see how serious Vit D Deficiency really is.

Come back and tell us what your GP is going to do.

Michelleyd28 profile image
Michelleyd28

My vit d level was also 18. Dr put me on 50,000 units once a week for 12 weeks. About 7 weeks in,I have noticed my immune system is WAY better. I was getting cold sores and or more sores weekly,that has stopped also. Other than that,I have fibromyalgia so feel pretty crappy anyway! After the 12 weeks is over I'm going to take 5000 mgs? I guess it would be every day. My Dr says 30 to 50 level is good but from what I've read I want it much higher than that

Beckymarie1986 profile image
Beckymarie1986 in reply toMichelleyd28

That sounds like such a higher dose compared to what I'm on. I've booked an appointment for next week to discuss it with a different Dr. Always nice to have a second opinion. I'm hoping my immune system improves also. I'm only a week in to taking mine x

SeasideSusie profile image
SeasideSusieRemembering in reply toMichelleyd28

Michelleyd28 As you are in the US I think you will find that the unit of measurement of Vit D there is different from ours in the UK. Ours is nmol/L and the recommended level is 100-150.

I believe in the US the unit of measurement is Ng/ml and the recommended range for that is 40-60, so your doctor is right.

Excess Vit D gets stored and can reach toxicity level so it is wise to retest once or twice a year when supplementing to keep within the recommended range.

Check out the Vit D Council's website, which is is based

vitamindcouncil.org/i-teste...

Marz profile image
Marz in reply toSeasideSusie

The original post does mention nmol/L for the measurement of VitD - so am assuming it is in the UK :-)

SeasideSusie profile image
SeasideSusieRemembering in reply toMarz

Yes Marz the original poster (Beckymarie1986) does says nmol/L so I assume she's in the UK, but Michelleyd28 is the US so the unit of measurement for her test will be in ng/ml. I don't think Michelle realises that it's a different unit of measurement.

Marz profile image
Marz in reply toSeasideSusie

Ooops ! - sorry my mistake 😴😴 - not concentrating !!

Michelleyd28 profile image
Michelleyd28 in reply toSeasideSusie

I am in the US. My Dr says 20 to 50 for the level but I have read with fibromyalgia it should be closer to 80

SeasideSusie profile image
SeasideSusieRemembering in reply toMichelleyd28

I don't know about different levels when you have fibromyalgia, does it say anything about that on the Vit D Council's website?

Michelleyd28 profile image
Michelleyd28 in reply toSeasideSusie

No, probably not.

Michelleyd28 profile image
Michelleyd28

Yeah, sounds like your dose wouldn't do much. I like to print off things and try to get the Dr to read them but doesn't always work well. Good luck to you!

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